46 karma · joined February 10, 2012
The last few years have seen people learn how to “roll”, effectively lightly pressing left or right and then drumming their fingers on the back of the controller, getting discrete taps far faster than typical. That lets modern players continue playing at level 29 speeds, and since the speed never increases again, they can play until the game gets to situations that could reasonably be ignored as impossible in the 80s.
Over that first year, though, things did slowly improve. I started working again, as a software developer, but only a couple hours a day. "Find a supportive employer" isn't helpful advice, I know, and I was extremely lucky I was working at such a place. The important piece, though, is that I was able to start finding routines and patterns with how much mental energy I'd have at different points in the day and week. Around the one year mark, I'd improved enough and found a routine that let me get back to working full time, but on an altered schedule. I work a few hours in the morning, take several hours off, then finish my day later on.
Experimenting to figure out how much I could do at a stretch, and what sort of breaks I needed in between working periods, let me understand my injury a lot more and adapt my life around it. I'd feel best Monday mornings, after a weekend, but if I didn't watch my work time like a hawk, I'd be useless come Thursday or Friday. There's the mental health "spoons" metaphor, where you get a certain number of spoons per day, then everything you do costs some number of them. When you're out of spoons, you're out, and there'll be stuff you just can't do. It's the same for me, but I think of it as a weekly thing. I get my 40 units of brain-on time each week or so. Working counts against that heavily, but even something like listening to music in the car runs down the clock.
So, all that said, first, you've got my deepest sympathies. I hope your condition improves soon!
As some more practical advice, practice advocating for yourself, and when you're unable to, try to find someone who can on your behalf. Don't be cagey about it either, but tell your friends why -- "Sorry, I can't, my headache is awful right now and I just need to be alone and quiet." Don't be afraid to cancel plans either. It's frustrating to have to do so, but if the result of attending is having to spend the next 24 hours in a dark room, it's probably not worth it. You might put some people off, but your friends will understand.
Next, find hobbies that don't tax your brain, or at least, don't tax your brain in the same way. Programming as a hobby is pretty much off the table for me, for instance. Doing crossword puzzles, though, seems like it exercises different parts of my mind. I designed and build a 3d printer, and continue to tinker with it. I've delved deeper into more aspects of photography. There are plenty of options, but the important thing is to find some things that won't drain you, leaving you able to do the work/school stuff you have to do, but also not making you sit idly by while you recollect your energy.
Finally, regarding work and school, I'd suggest avoiding freelance work. It's more stressful, since it'll be on you to continually find work. It's also easy to end up as the single person who can fix someone else's urgent problem, which is exactly what you don't want, especially early on during recovery. If you go to university, look for job resources there. There might be on-campus jobs to apply for, which would probably be part-time gigs, or something similar for external companies. Either way, try to develop relationships and prove your value to the staff and faculty, then parlay that into a longer-term role.
Once again, best of luck to you. I hope this has been helpful in some way -- if so (or if not), feel free to PM me if I can help, or you just want to vent about the neurotypicals.
I liked the 4/10 schedule, but I don't think it fulfilled my hopes for it. My intention was to use my off days for my own projects, as I was starting to burn out and feel uninspired. What I found was that it was difficult to shift gears for just a day or two, especially after working long hours the previous several days. For the most part, the off days would just be when I would run errands. Instead of taking a half day to take the dogs to the vet, I would use my free day. So, it was nice enough, but hard to fully utilize well.
Of course, I think the real trick is finding a job that lets you have a good work life balance. My work year, if I were full time, is only ~1500 hours. That, more than anything, is what I'll be looking for in any future jobs.
I got a concussion about six months ago playing hockey and am still recovering, not even working full time. I did a battery of neuropsychological testing about four month post-concussion and verbal fluency, specifically coming up with words starting with a given letter, was one thing they tested. They guessed at my baseline performance, then were able to pick word usage, among a few others, out as areas I'm now deficient in. My recollection is they said it was a common pattern to see.
I do have to say it's good to read of people who've come through this and feel normal again, even if it takes a long time.