572 karma · joined May 3, 2018
My most annoying symptom is when I exercise, sleep the day after and subsequent couple of nights (not the night of, strangely), is completely compromised. Really shallow, hot sweats, waking up multiple times etc. Im trying to understand if this is dysautonomia or PEM at the moment. Most of my fatigue follows from having this disrupted sleep I think and I dont have flu like symptoms typical of PEM, but it does feel like im having an allergic reaction. Very strange
I cant offer much support but youre not alone in suffering this
I had myocarditis, caused by an infection, likely a covid strain but unproven as it was so mild I never thought to get tested. No exercise for at least 3 months and lots of R & R. I did this but I've never fully recovered. I still get pretty bad post exertional malaise, cant tolerate caffeine or alcohol and my sleep is terrible - especially after pushing too hard. Extremely shallow and I wake up a lot. The real nail in the coffin is something about heavy lifting really tips me over the edge. I can do some (very) light cardio infrequently on good days.
Doctors have been next to useless in helping, I guess because there isnt any real treatment for what is probably a multi factor systemic problem.
Whats been fascinating is my garmin fenix watch has been able to track how I'm feeling to a T. HRV readings have been particularly helpful in knowing whether I should be really dialling back activity on a given day or allowing myself to push a bit more. Ive fallen from a baseline of 85-95ms average to 40-60ms average which is really interesting. I'd love to see what macro analysis of their data would reveal around illnesses such as mine. The sleep functionality has also been quite illumunating. Getting 8 hours used to reset me to 100 body battery, now im lucky to get back to 80 after 11 hours sleeping.
Im not alone and I'm lucky enough to have a mild case but it still sucks and has robbed me of a big chunk of my previous life and personality. Im really hoping stories like mine begin to trigger trials and further treatments.
All jokes aside, to expand on this for others, you can fix a lot of dependencies but as soon as you start your dockerfile with a FROM, youre hiding a bunch of dependencies which you no longer control, behind that command. An example would be:
FROM tiangolo/uvicorn-gunicorn-fastapi
If tiangolo decides to update anything in the base image defined here, your build is now different to how it was before without really knowing
Gradually, I began to get better, and this was in lockstep with my garmin's reporting of my HRV which had massively declined immediately after onset. At my worst, walking up one flight of stairs or showering would have me out of breath and send my heart racing.
Before all of this, I was an extremely fit young person (very high VO2 max and exercised daily). Im only just starting to get a resemblance of my former life back and I fortunately only had a mild case but it has really woken me up to the seriousness of post viral syndromes. I now actively avoid _any_ sick people, no matter how mild - my initial infection barely registered as a sore throat and sniffles.
I hope we really ramp up investigations into this field as I know there are a lot of people suffering in silence being fobbed off by archaic medical thinking in this area of medicine. Who knows what long term lasting damage has been done to my body
Is it this strictly true? Are people that are overweight not just "listening to their body" when they overeat? I feel its not as simple as that. If we always listened to our bodies we would never exercise beyond the first instance of becoming tired for example.