643 karma · joined March 14, 2012
LWJGL3 is full of hidden treasures.
It took around 12 weeks for the treatment to "kick in", but at that point tumor regression became rapid. Every CT scan since has shown significant reduction in the abdominal tumors until my last one a few weeks ago; there is no longer any sign of cancer in my abdomen. Overall, it went from "countless" visible tumors ranging from a few mm to several cms each in size, to nothing visible on CT today. o_O
Who knows what the future will bring. I'm trying to be optimistic but I'm also realistic about the statistics here. However, going from my literal death bed where I was in horrible pain suffering for 24 hours a day to quasi-normalcy in a matter of several months blows my mind when I think about it. It did give me horrible colitis (yay for autoimmune side-effects!), but I'll take that over a painful death any day of the week. The colitis is bad enough that they had to discontinue the treatment for a while.
tldr; Science rules. Side effects suck. And a sincere thank you to anyone reading who is or was ever involved in cancer research.
[1] http://www.wired.co.uk/article/dmca-game-preservation-exempt...
https://danluu.com/symbolics-lisp-machines/
Also interesting bits about the fall of Symbolics, the AI winter, and why Lisp adoption waned as a result.
However, it's still incurable, and making the patient aware of this was clearly difficult for my doctor, despite his incredible bedside manner. It was actually sort of humorous because the news didn't phase me; I had already come to terms with my death months ago.
The reason I mention this is because today I finally went over the long term plan for my life and death. Essentially Sloan Kettering embraces palliative medicine and combination therapies and they don't give up on you even as you transition from a control-focused treatment plan to a palliative one.
Furthermore, your team of doctors orchestrate all of this so you and your family do not have to stress about how to manage end-of-life care. It's really amazing.
So in my case, I will continue treatment until the disease becomes progressive and we've exhausted all treatment options (chemotherapy, immunotherapy, etc). Then comes the experimental stage; MSK is a research institution so they could potentially have experimental treatments I could trial.
Failing that, my primary oncologist will work alongside a doctor here specializing in palliative medicine and coordinate all future care together. Once the cancer has progressed to the point where I can no longer live a normal life (I'm still working and living life fairly normally, with caveats), they will coordinate hospice and such.
It's nice to not have to worry about that stuff despite the terminal nature of the disease. My hope is that MSK will be "good at death", to paraphrase the title, when it comes to my own. So far I have received amazing care and treatment here, so I am very optimistic. All I know at this point for sure is that I'm going to keep hacking until my last breath.
South Park has never been more relevant: https://www.hulu.com/watch/252630