bhpreece

I wasn't aware of HealthStart. Thank you for point it out.

Thank you. I appreciate you taking the time to clarify.

Thank you again everyone for your comments. Some of them have been helpful.

Tomorrow I will take down the HN front page. Your accounts will remain in case you still want to check things out. You can also delete your accounts yourself, or ask to have them deleted.

If you want, you will still be able to create a new account from the default main page https://katesapp.org. You will need to ask for an access code, but I'm happy to provide one.

Edit: Sorry, the option to delete your account has not been uploaded to the server yet. However, email me at the address in my HN account, or contact me through the app, and I'm still happy to delete your account for you if you want. Again, thank you everyone.

The main point is to share information. You and your father and your sister are all taking care of your mother with alzheimers. What was the geriatrist's phone number again?

As another commenter commented, this would be a good candidate for a local-first app. I'd love to do that at some point.

Already noted by another user. Thank you.

I have not thought about into this, but I'll need to look into the possibility. This could be a useful feature for an eventual version. Thanks for the idea.

It looks like Cariloop advises people on how to find medical assistance, is that correct? Is there someplace to get more specific information?

I'm sorry, no.

Access to information is strictly limited only to specific individuals who must be explicitly granted access.

Other providers in the same clinic can be on the same MyChart. Different clinics might have different MyCharts. Some clinics don't user MyChart, or have a different app. And as you said, you may have many providers, and they are not all on the same MyChart.

Arthur Howell is not me, and I have no connection with him.

Thank you. I'll look into all of this.

Thank you for the encouragement.

I could use your experience. Would you be willing to chat offline?

I would love to find a good web page designer.

I wasn't aware of that site. Thank you.

Thank you for these recommendations. I'll check out all of them.

I am interested in local-first and security. I'll get in touch.

> you need a lawyer

Legal advice is part of working it out.

I would appreciate a recommendation. I'm in Minnesota.

Thank you. They're all in my kanban now.

I like boldcontacts. It wouldn't have been useful for my daughter, but it would have been useful for my grandmother.

This information is all in the U.S. I haven't looked at international issues. I'll need to put it on my list.

Not really. MyChart (which is provided by Epic) is a way for doctors and clinics to communicate with patients. Although you could give you doctor access to your information on Kate's App, that's not the purpose, and they probably don't want it.

> app developer having a change of heart

Yes. Two features high on my list of todos: 1) download all your data; 2) delete all data from the site.

The second is a bit more complicated, since multiple family members may have access to the same data, and may have different opinions on deleting it. I'll work it out.

Otherwise, you have only my integrity. I'm not looking to sell it, but I would love to hand this over to someone with more resources and bigger pockets. If I ever do, I would want those reassurances from them first, and I would definitely give all users fair warning, so they can pull out if they don't have the same confidence I do.

> screenshots

High on my list. Or youtube, or something like that.

Thank you. You get it.

I look at my page on mobiles all the time. The lack of margins really pisses me off.

Ah. Thank you.

I use MyChart. It's a great way for your doctor and clinic to communicate with you.

It's not a place where I'm going to store contact information for all my doctors, or appointments for doctors that aren't at that clinic, or all my prescriptions and all the pharmacies.

When your daughter is reacting badly to her new chemotherapy, and running fevers and throwing up, and somebody needs to call her palliative care specialist and it needs to be you, not her, then where will you find the specialist's phone number?

I hope you'll never be there, but if you are, I think you'll understand.

Thank you everybody for your comments.

Comments on legal issues: I absolutely agree and 100% plan to get legal advice. In the meantime, if you have personal experience, I would love to learn from you.

Comments on HIPAA: I'm 99% sure this does not apply, since the site is for patients and their families, and no doctors, clinics, hospitals, or insurance companies are involved. All information comes from the family, and stays in the family.

Comments on security: This is a huge issue for me. I've followed best practices as nearly as I can, but I've also been asking around to find out who could do a comprehensive security audit, but haven't yet found anybody I trust. Does anybody have any recommendations on how to find someone?

Comments on terms of use, etc: Yes, this needs to be done, but I figured the terms of use are of no use until there's something to use.

Comments on "novice" and "learning projects": Yes this was absolutely built with love and grand intentions, and no, I'm not a novice. I wrote this because my adult daughter died of cancer recently, and we really could have used this. If I can help others deal with the pain of diseases like this, then I'm going to try. I'll work through the problems as they come up.

Aside from the security audit, I'm also looking for someone who'll do a much more professional design and L&F for the site.

Another issue I can really use advice on is how to show this to the people who need it. People who aren't dealing with the problem right now, aren't interested. How do I reach the maybe 5% to 10% of people who have the need right now?