I’m sure there would be a long line of willing terminal and euthanasia patients who would join a study to record their final moments, I’m surprised this hasn’t been done yet.
In this particular case, the press release notes "Scientifically, it's very difficult to interpret the data because the brain had suffered bleeding, seizures, swelling...". That does seem to limit how much can be generalized from this one case. A larger study of MAID patients would be more useful.
Edit: Maybe the issue is that the MAID itself would alter the brain state. That actually seems pretty plausible.
“I say to you that I am dead!”
In any case, the fact that a significant number of people opt for organ or body donation suggests they are willing to allow their deaths to be useful to others in some way.
For some that motivation might be strong enough to be willing to undergo some discomfort (if, indeed there needs to be any discomfort in the first place, which isn't clear). For others, it might not be.
The fact that you personally would be happy to be an organ donor but would draw the line at having an ECG while dying is a perfectly valid position to take. Many people would no doubt take the same position. It's unlikely though that 60-70 million people per year would all react that way. Neither of us has to be right or wrong here (about the difference between the two scenarios), because it's other people's motivations we're talking about.
I'm curious about my death, too! I've sat with people who are very close to that edge, and I realize it's the last experience I'll ever have, the last lesson I'll ever learn, and find it poignant that I won't be able to tell anyone else about it. Being part of an experiment like this would be... satisfying, somehow. It feels like it would give meaning to my death.
I respect that you have a different point of view, but I hope that helps you understand what would motivate someone to do something like this.
Because they care about leaving behind an impact after they die. I don't think it would be for everyone, but there surely be some people who would want to do this.
not all of it, presumably, if you want to express your distaste on the magical glass slab and you want pain killers on your way out.
But the philosopher of the Internet of today, instead of curiosity of reasoning and arguing for what should change in deontology, and why; sums it up as "ethicists forbid...".
I'd really like to understand your views better on what should change and why...
Especially when there's plenty of ignoring of ethics in today's world!
Ethicists seem worse for the world than actually unethical people because they bind the majority of good people from progressing, which is what gets us out ahead of our baser natures.
These applications allow you to dissect, discuss and reason about every presumption you had coming in, how you handle people's data with care, understand the risks and be prepared for anything.
They help both you and your participants. Help you not be an idiot, help you to grow and question your own procedures, and ultimately help you write the damn paper as you have clearly given the matter enough thought at that point. You need to prove yourself, and that is a good thing.