> Instead, we should be pushing the health record out to individuals, and away from the centre
One of my observations was that trusts think the opposite. I was in a call with one, and I said at one point, "Of course, the patient is the Data Owner" and I was corrected by a trust staff member who said, "No, the trust is the Data Owner".
Because - as I learned and saw later - trusts will sell data for studies. So they want the data.