Thanks for the resource, how have you found working with chatGPT for this sort of thing?
If you have some sort of mast cell disease, did you happen to get the covid vaccine? Any issues?
If you have some sort of mast cell disease, did you happen to get the covid vaccine? Any issues?
Yes I got the covid vaccine and boosters, and also flu, shingles, TDAP, etc. No issues. Are you aware that there's research that overlaps COVID and mast cell issues? For example: famotidine antihistamine activates the vagus nerve inflammatory reflex to attenuate cytokine storms.
For me personally, I don't yet know my root cause. I'm ramping up on medical research papers, and trying a hundred or so kinds of treatments to see what helps.
We've been considering everything ranging from hard science to total woo, with what's worked best documented here: https://edsetc.com/
Has had to restrict her diet down to ~5-10 very specific ingredients otherwise she gets extremely bad mast-cell flare-ups.
She was down to 4 ingredients when we first met (5 if you count salt), but she's up to a fairly standard diet now. Lots of stress reduction, and she worked really hard to test out one ingredient at a time. At this point it's avoiding a blacklist rather than sticking to a whitelist which is such an amazing shift. Things can improve, even with extreme cases!
My partner has confounding factors (autism) which is known to make this stuff worse than usual, but it is improving ever so slowly.
Your point around the politicisation of vaccines (and especially ANY kind of critique or question about side effects) is so spot on. We genuinely felt scared to even ask medical professionals out of fear of being labelled as anti-vax and having our overall quality of care drop as a result.