There is too much focus on the "cool" factor and not enough on quality of life and results for impacted patients. I don't know how to fix it.

I've mostly given up on commenting on this on HN. I have an incurable condition and it makes zero difference that these practices directly negatively impact my life and scare the hell out of me, such observations get down voted and attacked and treated like crazy talk.

I'm sorry for what your social contact is going through.

I have a spinal cord injury (well rather, an incomplete spinal cord injury) and knowing that every day will be like the last until I die has taken a toll that has at times almost led me to bring that event forward in time. Look after your nerves my peeps.

20 years is infinitely better than never. There are a lot of life-altering diseases whose future outlook is much bleaker (eg. little funding or research interest). But yea, having to wait so long definitely sucks for those currently suffering.

Bring it to market faster then?