This often puts me in a position where I feel pretty confident that I have more fresh knowledge about it than the doctor before me. Someone who in all likely hood has a mild familiarity with it, and is filling in the blanks with rote medical intuition.
What I really wish is that I could get doctors to drop the veil, and just openly admit what there depth of knowledge on the illness is. I would love it if they googled stuff right in front of me. I absolutely do not expect them to have a full medical encyclopedia in their head, and I am smart enough to be able to not be put off by "I don't know/I'm not sure".