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Comment by LudwigNagasena | Hacker News Reader

What supplements have you been taking and what is your diet?

I switched to carnivore 100% for a month when I started improving. I was taking mitochondrial supplements like megadosing B1/B2/B3/Niagen/NMN, CoQ10 + PQQ, L-carnitine, R ALA, pterostilbene. I took 1000-2000mg bovine lactoferrin with up to 120mg iron bisglycinate and 25-50mg benadryl for nights. I mixed my own AXA1125 (BCAA, Glutamine, NAC and Arginine + vitamin C) and took about 50g a day of that. I took endothelial stuff like nattokinase, serrapeptase, aspirin, diosmin:hesperidin, aescin, curcumin, quercetin, K2, ginkgo, pycnogenol/OPC, omega-3, kyolic, hawthorn berry. I ate 1 non-sweet chocolate a day (100% Lindt) to raise adiponectin and PQQ. I took like 5g of magnesium bisglycinate and potassium citrate a day. Daily workout was important even if it sometimes went to painful headaches which I controlled by ibuprofen and tylenol (the first two weeks were particularly horrible). Lately I added stuff like astragalus, artemisinin, dandelion root, boswellic acid, trans resveratrol, red beet, PEA + luteolin. I feel 1000x better than in February when I thought I could die at any moment.

Good luck unpacking all of that and coming off of it. A few of those things you probably shouldn't be on (daily aspirin), a lot of it you shouldn't stay on (all of the *ase, combined with aspirin is a huge bleed risk), and most of it has no evidence around it on examine. I think the exercise helped more than your cocktail of woo.

That's where I think you are wrong, read my earlier comment here:

https://news.ycombinator.com/item?id=36862855#36865016

COVID seems to be an endothelial illness, i.e. preventing blood from delivering nutrients and oxygen to cells. Moreover, spike protein seems to act as iron transport inhibitor hepcidin meaning you might end up with a lot of iron outside cells with cells getting into functional anemia. -ases + 100mg aspirin were about trying to break down "microclots" for which I didn't have a direct evidence as no lab was willing to do the test but only indirect evidence from some Australian medical doctor that only started recovering when adding -ases + aspirin + endothelial stuff to his mix.

See:

https://xdrx.substack.com/p/how-i-recovered-from-long-covid-...

Wow, thats quite the list. Saving this in case I know anyone with similar problems.

My dad lost his smell sadly

Please see my comment on the parent -- my lingering symptom was loss of smell, along with some cardio issues. While I haven't tested the cardio side "for real, for real" yet, I'm a couple months in with that concoction and my sense of smell is back to what I remember prior to my covidx2 experience.

Would have been interesting if you had logged your biodata with an Oura ring, or so. I'm planning on doing something like this to get out of a kind of fatigue and sleep problems. I also have a rowing machine, incidentally.

I only tracked data with my smartwatch, my resting HR was basically going down from over 100 to under 60 in 1 month. Oxygen level was 95-99% all the time, but I never got ScvO2/SvO2 measured in the hospital (some say LC folks have only 20-40% SvO2 which is ICU level).

Which watch? They're differing quite a lot in accuracy. Heart rate is mostly fine, but I wouldn't necessarily trust Oxygen or sleep phase tracking. https://www.youtube.com/@TheQuantifiedScientist

I think it was one of the Huawei watches.

much of what you're taking helps with Mast Cell Activation Syndrome, which is common with long Covid

It's possible it was a component of that but I never specifically tracked MCAS symptoms. I basically took everything anyone remotely mentioned as helping them or appearing in some medical literature if it was OTC ;-)

I had success with the ingredients listed here: https://detoxthespike.com/#ingredients

You can find most of those quite easily, although I had a bit of a hard time getting my hands on some of those enzymes. Been taking that recipe for a couple months now and my sense of smell has returned to full blast. For reference, I got COVID two times.

Wait.. I'm trying not to get my hopes up but my dad lost his smell for almost 2 years now. The most he's gotten is a single whiff of grass like a few months ago and it made him cry.

Are you saying that if I bought this detoxthespike thing it might help? Obviously nothing is certain, but unless I'm misreading your comment the above link you sent helped with your smell?

I had a few long covid symptoms -- for background, I got covid in early March of 2020, and one of the symptoms I had was complete loss of smell for about a week after, followed by a recovery period that never got me back to 100%. After detoxing with the ingredients in that formula, within a couple weeks my sense of smell is back to what I consider normal, and I feel more clear overall, for lack of a better phrase. I am still taking this formula daily, but more for general health, along with a supplement called Wellness Formula.

I'd say if your Dad is experiencing symptoms around his sense of smell, it wouldn't hurt to try! Most of the ingredients are easy to get online and are great for general health, regardless.

If you grab the ingredients (or a bottle), let me know how it goes! I've been recommending this concoction to people quite a bit lately, and I don't know if it's placebo or what, but it seems to help.

In either case, all the best for you and your father!

I started recovering after 2.5 years so even if things look hopeless, they might not be.

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