Give me a surefire, 100% guarantee that my data won't be misused against me or anyone else, under severe penalty to you personally if your guarantee fails. Then we can talk.
In fact a surefire guarantee essentially doesn't exist. But what exactly are you afraid of? How does someone weaponize your information? Everyone in my life already knows about my health conditions, i speak openly about them in my personal life, my business life and online there have been zero consequences to this.
Well that's really the point, ain't it. You can't even meet the bare frakking minimum for this to be workable.
> Everyone in my life already knows about my health conditions, i speak openly about them in my personal life, my business life and online there have been zero consequences to this.
Would you mind listing them out? Also, some vital info like date, place of birth, name, family medical history? Who was your mom and dad? Grandparents? Got any siblings/cousins? Also, go ahead and measure your bp, heartrate, blood sugar levels, and post those here as well, might be useful to know those too. Oh, reminds me, gonna need to see your hepatic and renal panels as well, you never know when that sort of information about you might come in handy.
I mean, now that we've interacted, I'm in your life too, and I'd like to know all these medical facts about you.
Edit:
> How does someone weaponize your information?
A lot of other people have posted some of the terrible consequences that can result, but let me give you a more inane one that might actually be a little easier to connect with.
Blood types are not evenly distributed, especially when it comes to blood banks. Some blood types, and especially if your have an uncommon Rh factor might be harder to get. So just imagine if your health insurance was more less expensive just based on your blood type -- something that you will probably need to know (and will thus be available to your insurer) at some point in your life, and probably relatively sooner than later. How'd you like to pay hundreds or thousands more for health insurance based on your blood type alone (because there won't be any discounts for the common ones, just penalties for the rare ones.) Or worse, being denied coverage for a surgery because the blood you'd need transfused during it would be 'too expensive'.
Not everyone is comfortable speaking openly about their health issues and not everyone is in a situation where they will be free from consequences if they do.
Fire you if you've had an abortion?
Fire you if you've had gender affirmation surgery?
Refuse to hire you if you've been treated for addiction?
What if you're a public figure?
Press announces you've had cosmetic surgery.
Press announces you had an anal fissure treated.
Press tells everyone you have an STI, or your children have an STI
There are a lot of ways to weaponize medical information.
Like throws you in prison because you were pregnant and now you are not, and the state concludes you must have had an abortion which just recently become illegal where you live?
But at least there is a law against it. Loosening the rules would certainly lead to misuse - use against the patient.
“It doesn’t matter to me therefore it shouldn’t matter to anyone else. My experience is universal and correct.”
Show baby diapers ads because Google knows I'm pregnant. Increase the price of baby furnitures because Amazon knows I'm pregnant. Decline a job interview because LinkedIn knows I'm alcoholic. Tell me what parties I might be interested in because Facebook knows I have cancer. Refuse a ride because Uber knows I'm not vaccinated.
None of this situations is far fetched, and none of those situations is something positive.
Companies only care about profits, not the betterment of society as you seem to believe. I am very happy there is no way for them to know more than they need about my private life.
> my business life and online there have been zero consequences to this.
because those laws were in place. Do you believe companies have been behaving nicely because they care about you ?
> None of this situations is far fetched, and none of those situations is something positive.
Not only is that type of a situation not far fetched, it was the reality throughout Canada as recently as 2021 and 2022.
"Also effective October 30, travellers departing from Canadian airports, and travellers on VIA Rail and Rocky Mountaineer trains, will be required to be fully vaccinated in order to travel."
https://www.canada.ca/en/transport-canada/news/2021/10/manda...
Given Canada's large geographic area, access to domestic air and rail travel is extremely important.
That type of unjustifiable discrimination also applied to other services/venues/events, too, such as restaurants.
What's even more nonsensical is how those policies remained in place even when it was blatantly obvious that the so-called "vaccines" involved didn't seem to prevent infection and didn't seem to prevent transmission, even among the so-called "fully vaccinated".
The very negative social and economic consequences of those awful policies far outweighed the non-existent "benefits".
If some good did come out of this, it's that at least a larger segment of the Canadian population realizes the importance of privacy, especially of medical records.
This is so easy to recognize that I have to wonder if you've ever met a less-privileged person than yourself.
1. A fully functioning, treatment-compliant schizophrenic is now at risk of being passed up for jobs or promotions because their medical history is up to be bought by employers.
2. A local concerned citizen will be much more afraid of protesting or publicly being against a politician if the politician can buy their history of getting PreP, an HIV preventative drug that is popular in the homosexual community.
3. A religious private school starts to buy the medical history of their young girls, and reveal which girls are taking birth control, had had an abortion, etc. by expulsing them from the school.
Or simply put: You first. Put up your hemorrhoid surgery photos up on your LinkedIn.
I guess you're not an alcoholic? That's information that potential employers would be glad to pay for. In the days of paper records, doctors would write "C2H4OH" on your record, as a semi-coded message to other doctors.
Estimates vary, but I understand that close to 25% of the UK population is alcohol-dependent to some degree. Deterring people from seeking treatment seems "unhelpful" from the POV of general social benefit.