You might want to read 'The Lady's Handbook for Her Mysterious Illness: A Memoir' by Sarah Ramey (Known also from her band Wolf Larsen). She goes back and forth between providing an overview of this 'mysterious illness' from different angles, and her gutwrenching absolute trainwreck of a personal experience of it. It seems you already found your way the same way she eventually did, though.

As the title says, the book is womens body specific - but also a guy i still found it very insightful to read.