What I learned (perhaps too late lol): * Medical Science is largely empirical (requires statistical nous), unfortunately doctors do not understand statistics, take argmaxes and treat things deterministically in the guise of evidence based medicine. * Said doctors advise Insurance companies so any doctors that do understand statistics will be bounded within the confines of what the insurance company considers evidence based medicine. This creates wasted work and even frustration as the doctor has to jump through hoops to get things done. * getting a rare disease or disease with uncertainty requires becoming an expert on it to "correctly" navigate the health system (US here). I have a newfound appreciation for not only those who have to deal with insurance but simply navigating the uncertainty.