Would you mind sharing how you were diagnosed?

I know that aortic aneurysms is a common side effect.

There is variety of supplements one can take.

There is a physician in Germany Dr. Stefan Piper who published a book on it. He goes over possible therapies. Tendonitis usually gets manageable. Neurological symptoms are the ones that are more difficult to treat.

Some people report success with high dose thiamine, but high dose thiamine has been helpful in fibro and small fiber neuropathy along with alpha lipoic acid. Anti depressants can be also used to manage symptoms.

Some people reported resolution with pirenzepine. There is a drug company putting pirenzepine in a cream to treat nerve damage. That is currently in trials. I think the company is called WinSanTor.

My condition has improved but I still cycle. I’m taking antioxidants and other supplements that support mitochondria.

There is a sticky thread on reddit r/floxies, that discuss some of the supplements used and reasoning behind them.