So true. My son was born with severe hearing loss, and for 5 years we have heard treatment was on the horizon.
His hearing has now declined to the point where he needs a cochlear implant, and I worry that if we do that and a treatment is eventually developed, he might not benefit from it. However, I think it would be foolish to wait. Gene therapy seems like the only hope, and I don't think there have been great developments in that area.