Comment by notafraudster | Hacker News Reader

Comment by notafraudster | Hacker News Reader

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My father died from a glioblastoma multiforme. Median survival length for a glio is 11 months. He was diagnosed September of 2010. My father was in his late 50s, lifetime smoker, not particularly amazing or poor health before the diagnosis. He had surgery, chemo, radiotherapy. He died in March 2015. During that time he had occasional seizures and memory issues, but no progressive physical symptoms. We went to concerts while he was sick. He traveled. Other than the memory issues nothing was impairing his life.

The first sign anything went wrong at the end was a routine scan showing a small amount of growth 2 weeks before his death. The second sign anything was wrong was a phone call I got on a Friday where his speech seemed very tired. On Monday I got a phone call saying to fly home. He was awake but not especially alert when I got there. He died on Thursday or Friday.

So all that to echo that the trajectory of this person's illness is believable, whether or not the story is ultimately true.

My father also died from glioblastoma multiforme, diagnosis early May of '16. First sign anything was wrong at all was double vision, shortly after diagnosis he lost balance and quickly become wheel chair and then bed bound, his personality pretty much evaporated and he never was 'himself' again. He died less than three months later due to pneumonia he was unable to fight from taking chemotherapy. Early 60s, good general health though somewhat obese, never smoked or drank.

The doctors told us they had never had a GBM patient deteriorate that quickly. Watching somebody perish from pneumonia put it pretty close to the top of the list of ways I don't want to go.

In any case this is also to say that we don't want to make too many assumptions about whether a case is real just based on timelines. People can either blow right pass the timeline, line up with it, or perish very early.

My father died recently from sudden illness at a really very advanced age -- with some problems from dementia that never really got to the worst possible. I lost my mother to one of the worst cancers possible when I was much younger (again suddenly but in the process of a long terminal diagnosis).

So I half want to upvote you both for the points you're making about variable, unpredictable survival times after diagnosis, and half want to hug you both in sympathy for the way you lost your fathers. That must have been rough and I hope you have found the support you needed.

Likewise, it doesn't sound like you had an easy time of it yourself.

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