Also prevents employment discrimination based on genetics.
https://www.genome.gov/about-genomics/policy-issues/Genetic-...
(disclosure: have had my DNA sequenced by multiple organizations, and it's publicly available)
"How could we know our vendor's vendor was using genetic information in their proprietary risk score?"
"How could we know our client's client was using our score for life, health, or auto insurance/employment/lending/etc decisions?"
It's a "can't unring a bell" situation and the gaps in the regulations and the incentives for bad behavior are enormous.
Insurers have auditing requirements to prove what goes into the policy calculation. It is impossible to hide illegal data use at any meaningful scale, and no insurance agency is looking to save a buck on a small number of clients.
Your comparison is irrelevant.
In Spain, for example, we have a private system but it is extremely inefficient in some areas (and very good in others). Of course, you can have private insurance, but you still have to pay your social security. Curiously, the only ones who can decide which system they want are the public servants...
You cannot really avoid the fundamental constraints - anywhere in the world, there are only so many doctors and so much money available for treatments. IDK if USA has a shortage of doctors, but plenty of European countries do. A country like Romania just cannot give its doctors big enough wages to stop them from seeking employment elsewhere, where they will get five to ten times as much (UK, Germany, Switzerland). As a result, local hospitals are seriously understaffed.
Where I live, having personal connections to good doctors gives you an advantage - you will be examined and treated faster. Then there is outright nepotism.
The outgroups are different than in America, but there are always people for whom the system sucks.
What you say may be somewhat true in the context of transmuting the US's "private" bureaucracy into bona fide "government". But it's certainly not a "fundamental constraint" that's impossible to solve. Rather it's a failure of organization, whether critiqued in terms of bottom-up market failure or top-down governance failure.
This is incorrect. Most of the paperwork is done by administrative staff. Paying for that giant staff + the actual medical professionals is why things are so expensive.
Hospitals are not stupid, they won’t waste their most valuable resource (healthcare time) on bureaucratic paperwork.
And no, hospitals' most valuable resource are their billing computers. I think when it comes to providing actual healthcare hospitals are very stupid. You cannot partition any knowledge worker's attention into 10 minute blocks and expect them to achieve anything useful, yet that is what their entire system is designed around. The hospital doesn't have unilateral say of course (an "insurance" company won't pay one doctor the "price" of two if they spend twice as long with a patient), but they're still content optimizing within that status quo outcome - completely scatterbrained care.
And it's not like individual doctors are well rested or happy when you talk to them. The system clearly takes their toll on them (eg disappearing for 5 minutes to go retrieve test results that didn't show up before your appointment). In fact I'd say the vast majority of human talent in the medical system ends up completely wasted.
X is the amount of medical care available
Y is the amount of medical care wanted
If Y < X there is no problem with any of the systems. And, obviously, a certain amount of inefficiency doesn't affect patient care. Plus, perhaps relevant today: when shit hits the fan we can scale up available care quickly.
If X > Y it doesn't matter which system you choose, someone will go without. You can change who goes without but you cannot fix the system by changing the method of dividing care.
Can things be somewhat improved with better organisation? Sure. Probably. But let's not overestimate it either. Let's take a dream scenario: optimal organisation can make 20% more care available. How much more care is wanted? I think we can safely say the US population wants 200% or more than the current system provides. Whilst nobody's opposed to improving organisations, it cannot fix the problem.
Fixing the problem is something you can only do by doubling the medical training available. That'll be a lot of extra dollars, none of which go anywhere near patient care for at least 10 years, so I would expect a lot of strong opposition from a lot of sides. But it's the only way to fix things.
They are caused by high barriers of entry, which in turn are caused by entrenched elites gatekeeping jobs through absurdly high tuition fees, expecting everybody to take lots of student debt and a very litigation-friendly environment. These costs are then passed on to the general population through a byzantine system of health insurance that leaves a lot of people uninsured.
> Let's take a dream scenario: optimal organisation can make 20% more care available.
In 2020 UK spent 3278 GBP (~4400 USD) per capita on healthcare [1]. USA: 12,530 USD. That's about 3 times less or a difference of 200% [2].
In UK life expectancy is 81.2 years. In USA it is 78.79 years.
3 times more spent to get a worse outcome doesn't seem like "20% difference" to me. Of course there are other factors, but are they enough to overcome 3x difference? I don't think so.
You cannot compare healthcare systems on X doctors per Y patients basis, because the outcomes aren't linear. It's orders of magnitude more expansive to treat many health problems if you go to the doctor 2 years too late. And the outcomes are worse despite the higher costs. Guess what happens when people have to pay a lot for each visit - often they go too late.
[1] https://www.statista.com/statistics/472940/public-health-spe.... [2] https://www.cms.gov/Research-Statistics-Data-and-Systems/Sta...
Gattaca shows eugenics has been so vilified that the audience will root for a character who selfishly commits fraud, risking lives and scientific progress for his own vanity.
The really scary fact is that there would be no need for a police state and segregation. The genetically enhanced would just completely dominate an open and fair competition.
In the movie, either the genetic augmentation didn't work (as well) as expected, or their advantage caused the augmented people to become lazy because they got covered in undeserved status no matter how little or much they worked, as everything depended on which genes they have been "bred" for. Then someone with supposedly bad genes could run circles around them just by working hard.
Maybe some mixture, e.g. in order to protect those kids who fail at the task they have been "bred" for from considering themselves failed humans, gattaca's society adopted this model where they shower all kids in status who have the right genes. Maybe it's not the kids who are being protected but the companies selling the augmentations.
There's a guy on YouTube doing diy gene therapy to treat his lactose intolerance so it's not exactly science fiction.
https://youtube.com/c/thethoughtemporium
He’s got a ton of other interesting projects, the DIY gene therapy is just one that stands out because it seems so risky.
If someone steals my DNA I can't stop them. But I can at least avoid being swept up in large scale DNA scanning and tracking efforts.
https://en.wikipedia.org/wiki/Joseph_James_DeAngelo
On April 24, 2018, authorities charged 72-year-old DeAngelo with eight counts of first-degree murder, based upon DNA evidence; investigators had identified members of DeAngelo's family through forensic genetic genealogy.
Edit: I used to help Google fund researchers like Joe Derisi and others who develop technology to do this, and some of the people I worked with in my academic career are quite good at identifying serial killers from 30 year old DNA. If you're downvoting because you think I'm making this up, you're wrong. If you're downvoting because you don't think large-scale individual detection using genetic sampling of the environment is possible, you're wrong. If you're downvoting because you think you couldn't do a whole genome sequence of an individual using a sample collected in the wild, you're wrong. If you're downvoting because you think this is a terrible idea (morally, ethically), that's fine but I didn't say anything about my own moral or ethical beliefs about this.
It's simply factually correct to say that large-scale individual sample collection (at order tens of thousands, if not hundreds of thousands of individuals in a country the size of the US) is possible. All the technology is there to do this.
> Its "research programme information sheet", last updated on October 21, says the company retains data including "biological samples" and "the DNA obtained from such samples", as well as "genetic information derived from processing your DNA sample ... using various technologies such as genotyping and whole or partial genome sequencing".
The policy also says Cignpost may share customers’ DNA samples and other personal information with "collaborators" working with them or independently, including universities and private companies, and that it "may receive compensation" in return.
[1] https://www.telegraph.co.uk/news/2021/11/14/covid-test-firm-...
> L.A. County Sheriff Alex Villanueva .. was briefed by the FBI about “the serious risks associated with allowing Fulgent to conduct COVID-19 testing,” ... the FBI advised him that information is likely to be shared with China, and that the FBI told him DNA data obtained is “not guaranteed to be safe and secure from foreign governments.”
But also all the unintentional donations: Every pubic hair you lost on the toilet seat, every tampon you disposed, every bandage you ripped off and threw away, every mattress you slept on, chewing gum you've spit out, every ejaculation, every ... you get the idea.
That's why you need laws to regulate this.
I'm joking, I don't think you did anything wrong but I'd hate it if a ridiculous argument such as this example gained any traction :
Example : The government / aliens / whoever released the virus so we willingly gave them our DNA to sequence and match with our assigned ID so they can do XYZ in case the implant in the vaccine doesn't work or if we are smart enough not to get vaccinated.
Scary stuff.
At the base of it, if the gov. of the country one lives in is the enemy, it can’t be a matter of refusing vaccines here and there, that’s not the scale they should be thinking about.
https://www.latimes.com/california/story/2020-12-08/man-in-t...
I'm really hoping someone will work on an open source "23andme@home" solution that ties all this together in an accessible way.
The results have been pretty astounding. I found markers that pointed to poor response to a specific blood thinner my grandfather was put on before he passed. Currently I'm researching the cluster of Bipolar / ADHD / SAD symptoms I experience that all seem to trace back to a certain genotype of circadian rhythm genes I have (thank you, Sci Hub). To boot, some of the studies I've come across have been done on Han Chinese populations that match my descendance.
Perhaps going too far down this rabbit hole poses a self-diagnosis risk, but the correlations to my family history and my own life experience working with doctors to diagnose and treat symptoms are pretty undeniable. And given that your run-of-the-mill psychiatrist is going to treat you off of a DSM checklist, I feel much more confident knowing there have been genomic studies to back things up, since my doctor isn't up to date on this research, and finding one that would be will be difficult and expensive. I've shared the papers with my doc and he's been supportive, sometimes I feel like I should be getting a discount on services rendered.
Self-diagnosing is not the problem it is made out to be - I live with my symptoms 24/7, doctor sees me for 5 minutes. The amount of times doctors have missed fairly clear sign of trouble in my family is disturbingly high. A simple procedure, done in time, would have saved two people I know.
Unfortunately our educational system teaches you about mitochondrion, but not the practical difference between ibuprophene and paracetomol, or CRP.