What have been the most effective lifestyle changes you've made? And how long did it take you before noticing their effects? Hope they continue working for you!
For me.
In order of improvement. Prescription: plaqunial. Blood thinners.
Avoiding flare triggers, Sun, heat, most foods.
Diet is huge. Autoimmune protocol diet is best for me. Similar to keto, etc. Personally I’ll eat a lot of sweet potatoes when I need relief. Safest food I have found.
Supplement: Vit D, magnesium, Vit E, fish oil, B complex, CQ-10 turmeric.
Autoimmune often means a lot of secondary conditions, or autoimmune is the secondary.
Increased cranial pressure is somewhat common with Sjogrens for example. High pressure is brutal on the mind and body.
Went from bed ridden in horrific agony all day to kayaking or equivalent every weekend.
I second the Anti-inflammatory diet and exercise (even just walking contributes greatly). I echo the supplement suggestions and also recommend glucosamine+chondroitin (which happens to lower all-cause mortality significantly).
Red meats (high omega 6 content), deeply fried foods, gluten (plenty of grain alternatives to wheat and corn), uncultured dairy (cheese seems ok, plenty of alt-milks out there), and sugar not from fruit can trigger inflammation for me. I might describe my diet as vegan+eggs+fish (ovo-pescaterian?)
There is a wealth of information online to tailor one's diet. Honestly - this is a diet that everyone can benefit from health wise.
The reason for the yellow/red flag system is to not impose a strict limit, but as a way to inform myself I'm in a danger zone. Primarily because many foods I love (ahem brownies!) are a flagged food. Telling myself "no", when I'm stressed or foggy state, often fails. However a "red" flag state helps bring out my inner engineer: “Can'nae take any more, Captain!”
There's probably a terrible joke to be made here about red shirts but I can't muster it
For those who can't tolerate dairy, or any kinds of nuts or seeds or grains, one kind of food that you might enjoy is coconut yogurt. Not cheap but it helps to break some of the dietary monotony.
It really is awesome that we can find what fits us with large store brands that deliver! Never knew how many forms of vegan protein exist out there
It's full of useful information even if you don't intend to go full carnivore.
Have you tried using the mushroom [extract] Cordyceps as a supplement? It seems to help abate some symptoms when I eat an autoimmune triggering food.
https://www.nowfoods.com/supplements/cordyceps-750-mg-veg-ca...
/r/Sjogrens /iih
Podcast Sjogrens Strong
Good resource Sjogrens foundation John Hopkins Sjogren foundation for more up to date testing and articles
Did you have muscle pain?