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Comment by agumonkey | Hacker News Reader

I don't have your condition but on its worse times my circular system was about to shut down, my 4 limbs were cut to sustain the rest. For months Any activity in one part of my body would cause the rest to feel numb. Even typing with two hands would saturate my brain. The story makes them smile as in "you wouldn't be speaking anymore if you experienced this". If I had a trace of the sudden lack of blood pressure they'd at least have something quantitative to consider rather than borderline incoherent speech. That said most generalist wouldn't consider it anyway as you said.

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That's really interesting - I havent heard of those kinds of problems outside of autonomic issues. You actually got diagnosed with something else related to cardio that causes that?

And yeah if it's low blood pressure-related that's hard to show them, since it changes so much and will be different in the doc's office than normal, and because there's no real way to do continuous BP monitoring the way you can with heart rate. Luckily in my case there's a simple test you can do at home or in a doctor's office to see the BP drop quickly.

So far not, I have tests booked next week. My 'wikipedia' self diagnosis was something similar to takotsubo syndrom. Emotional pain -> hormone flush -> broken heart muscle functions -> BP shut -> vaso-constriction reflex attempting to restore BP. Few weeks later I had a feeling of 'clogged artery' on my left side. No pain though, otherwise I'd have gone to a hospital because it would have seem like an infarctus. Looked like a very bad BP, very bad diet (sadness->eating shit), fat deposit, occlusion, near infarction. I suspect it affected my brain too, I lost control of my left side for sophisticated movements, for months I couldn't type with both hands while reading what I was typing (had to alternate one word, check, next word). Things are coming back now but still I'd love to have a full checkup (angiography, brain scan) to avoid pushing too hard on my system before the time is right, problem is no doctor will send you for such tests unless you're crashing in front of them. Takes time. For a year I wished for more non invasive medical monitoring and tests..

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