It brings me comfort to know that such a fallback will eventually exist, should I need one.
Note that specialists are saying that another promising drug from Scholar Rock [3] would probably prevent any further weakening if used in conjunction with my current treatment. Unfortunately, the FDA takes a long time to approve new medications and I have heard this one is particularly special because there is potential for abuse by athletes.
[1]: https://en.wikipedia.org/wiki/Spinal_muscular_atrophy
[2]: https://en.wikipedia.org/wiki/Nusinersen
[3]: https://scholarrock.com/our-pipeline/spinal-muscular-atrophy...