3,208 karma · joined February 21, 2014
I wish people would stop calling what we have a healthcare system. We have a medical industry, which seeks to provide a minimum of medical services for maximum profit. The system is working exactly as designed.
We should support science, but give up on medicine for health maintenance and chronic illness. Medicine as a practice is centered on curing acute illnesses and fixing acute injuries. I went to the emergency room recently for a really bad cut on my hand. The experience was fantastic. That’s the type of problem they know how to solve. It’s a completely different type of problem than a chronic illness, which depends on behaviors, environment, diet, exercise, etc.
And not just “you should exercise“. To recover my energy, I had to find just the right amount of the right type of exercise that would increase my energy without overexerting myself and making my symptoms worse. There’s no way that industrialized bureaucratic endeavor like modern medicine could help with that, unless of course I was rich. The medical industry can’t change. I’ve given up on it. We need a new science.
The fact of the matter is that the medical industry has no clue what to do about chronic health conditions like ME/CFS or Long COVID. They have no game plan at all. Everything I ever did to improve my symptoms and get my energy back was stuff I either did myself or just dumb luck that my body recovered.
> Instead of funding novel medicines like Ampligen, the NIH has directed most of its RECOVER resources to observational studies designed to learn more about the condition, not treat it.
So, this seems like a good decision. Observational studies aren’t giving up. They are the basis of the whole “evidence based medicine” pyramid of evidence.
It's not like I've had an easy life. At times, life has been pure torture. For example, I've barely been able to work at all for the past three years, because of being discriminated against in interviews, not because I was actually unable to work. The toll this took on my life and health has been incalculable.
From one angle, my autism is a superpower. From another, it's a curse. I'm able to solve intractable problems that other people can't. But since my way of solving these problems is impossible for neurotypicals to understand, and I can be kind of odd, I've been essentially unhireable. I've had to go into consulting because that's the only route open to me. And this is just one of many problems I've had fitting into society. It's exhausting to be "high functioning" in a society that doesn't accept what you are.
But yeah, I do agree that merging everything into one spectrum has made things unintentionally confusing.
The estimates now are that autism affects about 1 in 35 people. That’s not a disorder. That’s human diversity. I realize that there are less lucky autistic people who are severely disabled. If this helps them, then good, but I don’t want to be cured. I want to be accepted. And the way our medical system works now, I don’t trust that any treatments will only be used to help those who most need it. Children who simply need acceptance and a little support will be drugged, because that will be the convenient option.
For example, depending on how you calculate it, Merck killed between 3,000 and 500,000 people with Vioxx, and they knew the risks prior to releasing it. They got a fine. And now, the company is now doing just fine. No one was individually prosecuted.
If you have a corporate charter and billions of dollars, you have a license to kill.
I’m an experienced engineer. Copilot is worse than useless for me. I spend most of my time understanding the problem space, understanding the constraints and affordances of the environment I’m in and thinking about the code I’m going to write app. When I start typing code, I know what I’m going to write, and so a “helpful” Copilot autocomplete is just distraction for me. It makes my workflow much much worse.
On the other hand, AI is incredibly useful for all of those steps I do before actually coding. And sometimes getting the first draft of something is as simple as a well crafted prompt (informed by all the thinking I’ve done prior to starting. After that, pairing with an LLM to get quick answers for all the little unexpected things that come up is extremely helpful.
So, contrary to this report, I think that if experienced developers use AI well, they could benefit MORE than inexperienced developers.
It worked fantastically for me at my last job as a lead, and it’s working great for me now as a consultant.
First of all, there’s the ease with which I can get those ideas out of my mind and into working code. If I’m fiddling with a mouse and dragging things around in some virtual 2D space, it adds cognitive load and puts my mind in the wrong mode for coding. When I’m editing in vim, it’s easy to get into flow.
There’s also the case that when I’m planning my solution, I’m also using a text editor with vim bindings, so I can get into the same flow state more easily as I’m doing software design.
And even though a coder might only produce an average of ten lines of code per day, that doesn’t mean I’m producing 10 lines each day. Some days I produce none, and other days I produce a hundred, so it makes sense to optimize for the days when I’m producing a hundred.
Beyond that, even the idea of producing a line of code seems to assume that you’re only writing new code. I’d say that 70-80% of my coding is refactoring. I’m either refactoring existing code or refactoring the code I’m writing as I go. The ten lines I write in a given day may have been written as thirty lines in the first draft, then edited down. So, again, optimizing for flow here makes sense.