Autistic and Searching for a Home
blog.longreads.com
blog.longreads.com
Joy? In spite of the lack of legal status, she's more of a parent than many "parents" I know. It's a pity that she can't fight harder to get conservatorship of Savannah. Once Savannah is part of a family, with a financially responsible "guardian", she would qualify for more assistance, in both Canada and the US.
But, cut her losses? She's a parent, unequivocally devoted to her children. It's an idealized position for some to consider, sure, but there really are people who believe their job as parents -- a job that doesn't require having donated DNA to their child -- is to do everything in their power to make their kids' lives better than their own. That kind of parent doesn't "cut their losses" because their actions in support of their children aren't evaluated as a loss or a gain. It's simply what a parent does.
And on a personal note, it's remarkable how deeply an autistic child can ensnare your ambition, to imprint upon you the unstoppable motivation to help them succeed in a world where "difficult" citizens are just uncomfortably ignored, languishing in a system that won't get emotionally involved in their welfare. I'm lucky in that my son has tremendous capability for language, and is savant-like in his math and science skills. But he also breaks down when the shower curtain in the bathroom he shares with his sister is unexpectedly swapped out for a new one. He runs when someone tells him "happy birthday" on his birthday, desperate to escape, panicked beyond rational understanding. I do a lot for him, and he does a lot for me, and I guarantee that neither of us will ever try to assign loss or gain tallies to our interactions and decisions and celebrations and sacrifices.
Sometimes, there are no losses to cut. Sometimes -- all the time for some of us -- everything we do is somehow in service to our children.
Joy, in the original article linked, is a parent greater than most, and needs to be given conservatorship of Savannah. She could have no better advocate.
With that money, can't we do something that benefits society more?
We could listen to those who are sincere in their desire to help (like Joy) and empower government staff to advocate for these selfless citizens, at least enough to make a sound that rises above the noise floor.
(This one more US-focused) We could stop educating kids in school about abstinence as a primary means of birth control, stop the singular focus on safe sex for those districts that have moved beyond abstinence (though certainly include safe sex curriculum), and spend considerable time helping kids/teens to see what being a parent means. Because they're only getting it from Seth Rogan movies and FaceBook status updates, and both of those are woefully out of touch with reality. Then, we'd have more people truly prepared to be a parent, even when it's hard.
When do we give up on a person? All the things that you mentioned are good, and should be prioritized.
At what point does Shannon's drag on society need to be deprioritized to give funding to other social efforts?
Do we, as a society, have a responsibility to spend 91k+ doctors' fees to anybody with disabilities?
Rather, when should public fund no longer be allocated to these situations? If her parents were able to support her, there would be no problems. Why are they crying out for more public assistance?