This is terrifying story, my question is what we can do , so less people suffer from it. Here are few of my suggestions. I am curious about your opinion:

1. Obviously take care about your health.

2. Send as much money as you comfortable can to somewhere, where you think it might make the biggest difference.

3. Support indirectly companies which focuses on these problems. As consumer you can give them feedback on their apps. You can promote them amongst the friends(although make sure you aren't promoting some pseudoscience nonsense). You can choose to buy products from companies which helps the good cause.

4. Work on problem your self directly in work or in free time, by working on open source project, helping some organization.

5. Inform others about science. Many people don't trust the science, doesn't understand basic of scientific research, which can obviously hurt the research (by less funding, cancellation of research), helps ineffective pseudo-scientific treatment.

6. Give info to others about different treatments, and scientific breakthroughs. Many people have information about last treatments only through news, who can care more about great headline than boring truth.

7. Use your pc/mobiles by joining programs like Folding@home.

Any other tips?