Early Intervention in Babies May Eliminate Autism Symptoms by Toddlerhood
forbes.com
forbes.com
But I'm actually more worried that this, left as it is, is just going to be used by mothers and fathers of children with autism, or the adults around them, as an indictment that they weren't "good enough parents".
This was a common refrain leveled at mothers of children with mental illnesses not that long ago, and it would be unfortunate indeed if we let that type of accusation creep back into popular wisdom, to the extent that it's unfounded.
AFTER EDIT: Here are some more links with news about the currently reported study.
http://www.sacbee.com/2014/09/09/6690500/uc-davis-study-brea...
http://time.com/3305027/autism-symptoms-disappeared-with-beh...
The link below is a PubMed link to an earlier journal publication by the same research group.
For instance there were 6 success out of a group of 7, which is wonderful news. But that still means there was 1 "failure"... were the parents to blame? Did they apply the "cure" wrong? Or was this an instance of a technique not having 100% applicability.
This technique is far too late for my autistic child, but this is exactly the kind of question I would think a parent of autistic children would have, not to mention their friends and relatives who usually have even less insight into the state of autism research but who do remember headlines involving "cures for autism".
That's already something parents with autistic kids get to live with. You may get to choose your friends, but you don't choose your relatives, and some relatives have a hard time dealing with autistic grandkids/nephews/nieces/etc. Denial is a popular option. It would be stupid to even think about holding back a treatment because of this concern.
I'm also frankly astonished that we have to preface stories about autism treatments with how wonderful autistic people are and how we're not trying to "eliminate their uniqueness". My autistic son is only lightly autistic, but believe me, this is a disability. It's great, it's truly great that many people manage to live with it and their lives aren't entirely ruined, but believe me, it's still a disability. If you can mitigate it, do so.
This doesn't mean it shouldn't me midigated but you shouldn't make such sweeping claims about it.
I am tempted to make the comparison that I am female and that definitely comes with a raftload of disadvantages in this world yet that doesn't mean I wish I were born male, but, given the audience here, I am not sure that will make much sense as an analogy to suggest. (Yet, I seem to be making it anyway. Oh, well.)
Because of the wide range of the spectrum, you have some with autism who have advanced abilities who feel the need to advocate for low-functioning people who happen to share the same diagnosis. Unfortunately, the autism of my child is quite different than the autism of someone with the ability to speak out for others.
If you have been involved with charities or advocacy groups, you'll see the neurodiversity people on message boards and such.
Even the most profound and obvious disabilities are adopted by parents who refuse to see it as a disability. They take this so far that they will resist attempts to correct it. This is huge in the deaf community, for example. There is open aggressive opposition to cochlear implants, because they are seen as robbing deaf children of exposure to 'deaf culture'. It is a complex issue, because children need to be given cochlear implants long before they are capable of making decisions for themselves, so they are often crippled for life at the hands of their own parents - parents who can not share in the same treatment because they are too old. The lowest weaknesses of the human spirit are on display in some of these people, denying hearing to their children because they don't want their children to be 'better' than they are.
But hey, if you're going to play "I'm too twisted in knots by postmodernism to understand ethics anymore", why not ask whether it would be correct for a deaf couple to deliberately induce deafness in a child not otherwise destined to be deaf?
(The best part is that these questions probably cease to be hypothetical in another 20 or 30 years.... and then the shit really hits the fan....)
I don't think you can compare possible social benefits of skin color with very real benefits of loosing a major sense. How is denying them treatment functionally different than causing the condition itself?
I remember a long time ago hearing about a cream which would turn your skin dark or even completely black, in the same way that tanning or genetics would do so. I.e. perfect sunblock.
I haven't heard of it since, so it must not have made it to market, but I wonder if it would have drawn controversy.
Yeah, I've seen that. My other son is legally deaf and blind. It turns out this is a fairly rare combination (only several hundred such children in my state of ~8 million). Fortunately he is not fully blind (though definitely profoundly affected), and recently we got word that he can stop wearing the hearing aids. But regardless, we've seen that in the relevant communities. We have enough time in the general special-needs community and the ones specific to what our children have that we don't tread into those. (What my deaf&blind son has, there is nobody pretending that it isn't a problem. It's.... emotionally draining enough to be on those support lists.)
My point stems instead from a question: If the "cure" is attempted, and does not succeed, is that because the parent was a failure? Or did the "failure" we see reflect an even better outcome for a child who might have been even more severely autistic without that intervention?
We live in a world where a not-insubstantial number of people honestly believe that vaccines cause autism, so whatever the answer to the previous question actually is, I can tell you the perception of the answer may very well be much different. The "Refrigerator mother" concept pointed out by makomk is precisely what I was referring to in our past. I hope that such slanders will remain a part of our past and don't pop up again.
But how can they assert with confidence that they've successfully treated a condition for which diagnosis at such a young age isn't accepted? Quite possibly 6 of the 7 children would have lost their symptoms anyway.
The study was not random, controlled, or blind.
sound like any child would benefit from it. And if it is enough to move a child above the autism threshold - that's just great.
That also bring question about the role of technology for parents who can't do that for one reason or another - can a computer/robot or a remote Mechanical Turk or some other technological way substitute the parent here, at least partially?
They actually gave all 7 the therapy. There were controls
but it wasn’t really random assignment. They definitely
need to do a larger study to look into it more (which
they will), but it seems promising as a pilot study.There were enough red flags that I'm pretty sure this was not a very scientifically robust study. For instance, even for a very small sample, wouldn't you still say how many out of the control group caught up (e.g. 2 out of the 7 control group members).
Also, I wonder if the person evaluating the symptoms knew which were the control versus test subjects?
Because everyone and their grandmother has a 'cure' for 'recovering' autistic kids, but most of it is bullshit bordering on abuse.