I absolutely agree with you. Medical progress depends on sharing information between service providers and those researches, etc that can produce actionable results from such data.

I'm trying to give the (necessary) counterpoint: small scale stewards or medical data (often) tend to take an approach of handling patient data centered on cutting costs. Having worked in both the financial and medical industries, I can attest firsthand how there is a (frighteningly widespread) disregard for privacy information.