A good explanation of the scheme, from Dr Neil Bhatia can be found at http://care-data.info/
It includes details of how to opt-out.
It includes details of how to opt-out.
"The data extracted - your Primary Care Dataset - will include the following:
Your NHS number Your date of birth Your postcode Your gender and ethnicity Your medical diagnoses (including cancer and mental health) and any complications Your referrals to specialists Your prescriptions Your family history Your vaccinations and screening tests Your blood test results Your body mass index (height/weight) Your smoking/alcohol habits"
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Go to that site. Opt out here http://optout.care-data.info/. It's really simple.
- State that you wish to opt-out of care.data
- Request that both the 9Nu0 and 9Nu4 codes are added to your GP records
- Remember to include full names and DOBs (and your address if you are happy to)
I wrote a letter with all of this, took it to the GP surgery. The receptionist was bemused. There has been no acknowledgement. Can I tell if I've been opted out, without hassling the already-overworked reception staff?
Considering recent government actions, I find it unsurprising that this is the only method - as far as I can find - to opt-out.
A simple form or email address would have been great. But we couldn't possibly have that for an online data service, oh no.