What Surveillance Valley knows about you
pando.com
pando.com
http://blogs.wsj.com/digits/2013/12/19/data-broker-removes-r...
I came here to say that this article is dynamite. I had not followed this story before, but it is at least as important as Snowden / NSA. However, the article loses its force from the middle and the call-out to US liberal politics towards the end is just pathetic. It is as likely that those who need to take action on the data industry are from the right, libertarians, or simply not aligned with parochial US political divisions.
Edit: re-reading the thread, the SOP objection is right. A plug-in is required.
Ironically enough, it might be illegal to do this, since it would injure Google's corporate privacy ("trade secrets").
condition user
dermatititis 1
rape 2
athletes foot 3
Then they did this: SELECT UNIQUE(condition) FROM user_sufferers
<h1> Lists for sale </h1>
{% for condition in conditions %}
<li> {{condition}} sufferers </li>
{% endfor %}
Fundamentally no different from ["Keep Calm and {{verb}} a Lot" t-shirts for verb in list_of_verbs]:
http://singularityhub.com/2013/03/20/keep-calm-and-rape-a-lo...The fact that things like rape, pregnancy [1], etc are detectible by computers makes great headlines. But we shouldn't act as if MedBase was deliberately targeting [{{condition}} sufferers for condition in hot_button_list] - that's fundamentally dishonest.
[1] See the case when Target knew some teenager was interested in products X, Y, Z, where the correlation was driven by the underlying causation of pregnancy.
edit: Plus I've never heard of "rape" being a diagnosed medical condition - why would that be in a list of conditions ? I find your 'explanation' quite troubling.
Incidentally, here is a cached list of the things they sell (the site is now not displaying them):
http://webcache.googleusercontent.com/search?q=cache:dI3aEj0...
http://webcache.googleusercontent.com/search?q=cache:8T2YX7h...
http://webcache.googleusercontent.com/search?q=cache:aRARHll...
I stand by my claim that they took a list of medical billing codes or something like that. Really, you think a human decided to compile a list of "Bioterrorism sufferers", "Smallpox sufferers", "Bites and Stings sufferers" or "Polio Sufferers"?
However, I'm now convinced their first step was less sophisticated than I suggested. I think they didn't take a list of users joined against billing codes, I think they just took a list of billing codes.
The SNOMED CT coding system has an incredible number of coded clinical terms. Including rape:
http://phinvads.cdc.gov/vads/http:/phinvads.cdc.gov/vads/Vie...
I still would not like the idea of a list of rape trauma victims being sold as that almost by definition would add to the trauma they have suffered if they knew this happened.
SNOMED CT is used to build 'clinical statements' which are combinations of SNOMED CT-terms to help build a more in-depth patient record. Many of those terms are non-clinical, but can be used in combination with clinical-terms.
Here's 'Victim of Statutory Rape': http://bioportal.bioontology.org/ontologies/SNOMEDCT?p=class...
I run a company that develops a web-based medical practice management system. We use NLP techniques combined with the SNOMED CT database (and others) to extract clinical-statements from all text inputted against a medical record. Whether it's a complaint, treatment, diagnosis, or even an email to the patient. So I don't doubt for a second that there are other systems out there that do a similar thing and have auto-associated patients with various clinical and non-clinical terms.
Just explaining how things might have come to be, as you do in this strawman exercise, doesn't make it acceptable, or does it?
Given the existence of "bioterrorism sufferers" and "polio sufferers" on the list, this explanation seems almost certain to be true. They stuck every medical condition on the list in order to boost their SEO, and they didn't realize that their list of conditions included hot button topics.
If you want to argue that data brokering is unacceptable, do it honestly and without pretending they are selling lists of rape victims and lepers.
This event is referenced in TFA. I remember reading it when it first came out and was (a) amazed at the ability to analyze purchasing data and come to conclusions such as this and (b) worried.
Previously, I never really cared for carrying cash so I used a credit card for almost everything I purchased -- online, of course, but also in person. Nowadays, I pay cash anytime I can: at the gas station, the supermarket, at restaurants, etc. I also stopped using my "loyalty" card at the supermarket and obtained a new one that was not connected to me in any way.
I'm not buying anything I shouldn't be, of course. I'm just of the "it's none of their business" mindset. This has carried over into other parts of my life as well, such as logging as little personal information as possible at work (ISP) and retaining it for as short of a period as possible.
> Normally, such detailed health information would fall under
> federal law and could not be disclosed or sold without
> consent. But because these data harvesters rely on indirect
> sources of information instead of medical records, they’re
> able to sidestep regulations put in place to protect the
> privacy of people’s health data.
What "indirect sources of information" could be used to identify thousands of rape victims?