I don't know anything about tracking your particular illness, but I have tried tracking various things in my life with varying success. Many times I've failed, but then I tried again in different ways. One thing that I noticed is that too often I would try to track too much too rigorously. It would become a burden, I would lose motivation, and I would stop.

For some things, I decided to find a way to do the minimum amount of tracking that is sustainable. One example is fitness. I tried keeping a detailed track of the kinds of exercise I do. I realized it is too much of a burden. So instead, I opted for just noting in my journal whether I did any exercise at all. And it worked. And I realized that I have capacity for more so I started marking whether I did too little, just enough, or a lot. And that was sustainable. And then I built it up some more and for one particular type of exercise, and now I track it thoroughly, while only noting the others. This is now a habit and it seems to have stuck.

So instead of starting with a thorough way of tracking something, start with a minimal way of noting and build up from there.