People are allowed to mutilate their babies, raise them in whatever destructive fashion they please, avoid vaccinating them in an environment where they will be exposed to deadly viruses.
But god forbid someone try to make their baby immune to AIDS, some other genetic disease, or reduce the likelihood of psychosis given family history.
There is no world in which regulators will let this happen. There is no way to test this in a manner that will satisfy them, because babies can't consent to a trial. If it was up to regulators, human evolution ends here. No group should have that power over our species.
It is the same problem as modern medicine being so prohibitively expensive to test, that most ideas go to the bin. We need a deregulated zone to allow for progress to actually happen.