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Comment by arjie | Hacker News Reader

Here is my genome https://my.pgp-hms.org/profile/hu81A8CC

You'd think my ideal self-interest is for no one to volunteer for any research except my own relatives so that all medicine is optimized to my care. But that doesn't work that well. The genome itself is just not that useful. If you learn something from that VCF for a whole-genome sequence that's interesting, feel free to let me know.

I personally benefited from the aggregate that is the UK Biobank's repository of genome sequences and medical histories, and I'm grateful for everyone who contributed that for science. PGP is the closest I can get to providing my data apart from All Of Us which has a bit of medical data about me but no one has all my medical history.

I hope that, if nothing else, I am a piece in an instrument for humanity to comprehend the Universe. Either through my genome being useful when compiled with others or as a cautionary tale to making your genome available.

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Thanks for sharing it. Everyone who thinks their individual DNA data is valuable has yet to explain why 23andMe was going bankrupt.

I don't have to consider something (monetarily) valuable to think it can be used against me.

> Zip code 94107 is located in San Francisco, California, specifically in the Potrero Hill neighborhood. It is part of San Francisco County. There are approximately 163 homes for sale in this zip code, with prices ranging from $338.6K to $5M, according to Realtor.com. The minimum combined sales tax rate for 94107 is 8.63%, according to Avalara. The per capita income in 94107 is $124,681.

It is interesting that knowing your zipcode I might have predicted your response.

> I am a piece in an instrument for humanity to comprehend the Universe.

For a lot of people, if their data is being used as a benefit, then they should be properly compensated for that. They're more likely to be trying to comprehend how to keep food on the table.

94107 is a discontinuous zip code. It contains both SOMA (where I live) and Potrero Hill which you have quoted. What was the prediction?

> For a lot of people, if their data is being used as a benefit, then they should be properly compensated for that. They're more likely to be trying to comprehend how to keep food on the table.

Certainly, I am a great believer in the market. If they believe the price is insufficient, there is no reason to sell. I am only offering them this information for free so that they may set their price in a more informed manner. I'm doing that because I have a related semi-religious personal principle https://wiki.roshangeorge.dev/w/Observation_Dharma

I have no 23&Me profile, and I prefer to keep my genome private. However, IF you are NOT in the personal-data risk-averse camp, there is a point in rather giving your genome data than giving your online activity profiles. The former can at least be used for biology research/treatment development and thus clearly has higher upside for humanity.

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