Data that can be used against my children is another.
My late wife had MS. It took her. Insurance companies would love that data to load against anything my kids do.
There are other issues but the fact is that companies will use DNA and every other data point they can to maximise what they take and minimise with loaded terms what they might, just might, maybe, pay out.
It's not about the now.
It's about the later.
Sadly this is coupled with incontinence (mainly urinary), so before I go out (every 3 months to the doctor), I have to make sure I do not drink, or if I do drink, I need to account for that when I go outside, but as a precaution I wear those diapers, not sure how they are called, those undies that are diapers, essentially. I wet my bed many times at night.
I have severe anxiety and depression which I have had long before the lesions, but given my circumstances and the damage, it is now worse.
I wish I had more financial help. There is a friend who helps me as much as he can, but other than that, I got no one. The Government gives me almost nothing per month. According to their calculations, somehow a person is supposed to get by by 900 HUF (~2.6 USD) per day.
I'd probably suggest you post about your experience with this in a way to relates to your experience as a dev since it seems you write about technical stuff?
I'm thinking about that blind guy recently talking about Linux accessibility making blindness a lot more relatable to people on sites like HN, who also are more likely to have disposable income to donate
So it’s pointless in the end