It is exasperating dealing with doctors about it. I've had 6 colonoscopies since I was 25, one procedure where they implanted a device in my gut for a month and observed whatever data it was collecting, I've tried food logging, various diets, cutting out things people say you're supposed to cut out - I received an initial diagnosis at the hospital of ulcerative colitis, but, a flareup has never been observed in a colonoscopy. I suspect it's something like that, but, the diagnosis is kind of just "IBS - general." Really frustrating, especially when you hear the same kinds of advice over and over and over that just doesn't work.
It's been so many years that I've just become accustomed to it and it doesn't bother me quite as much as it probably should - I'm constantly aware of where the nearest bathrooms are, because whatever I have going on produces tremendous urgency a lot where I only have 5-10 mins (sometimes much less) to take care of business or bad/embarrassing things will happen.