> hope to reach 60 in August and all I want for my birthday is another one

This sentence is so powerful. I am very sorry to hear this. In these situations, I can't help but feel it's so unfair.

I'm not talking about unfair as in people dying young. Unfair as in there is a particular combination of alterations to physical matter that is going to solve this problem. It's out there. We just haven't found it.

I know it's not this easy but I grind my teeth thinking that if someone, somewhere has an epiphany today, this person can be back to fill health in no time. today was not that day.