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Comment by hvs | Hacker News Reader

As someone with Crohn's disease (thankfully now in remission) I can fully relate. Nausea is the worst symptom because it is so debilitating. You don't want to do anything when you are nauseated and when it goes on for months that affects every part of your life.

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That's so interesting. I have crohns' (definitely not remission but not flare either), and nausea has never been a thing for me. It's just pain and the usual incomplete digestion if i stray at all out of my heavily restricted diet. How did you get remission? I'm about to have to up my remicade dose

Mine is primarily in my large intestine, so it's like a weird combination of Crohn's and UC, which could be why it causes so much nausea. Remission for me was just sort of luck and time. I was first diagnosed at 28, was on a ton of steroids followed by about 20 years of Imuran. After a colonoscopy my GI doctor said that my colon shows no sign of damage anymore and that since Imuran increases risk for cancer that I should consider trying to reduce my dosage. After about a year of reducing I was totally off with no return of symptoms. Now I'm just on mesalamine. So, TL;DR, I got lucky. Good luck with your treatment.

Knock on wood, mesalamine has been good to me too. (Not quite remission atm but promising improvements.) IIRC most of its effect is in the large intestine, so it generally works better for people with UC, but I'm the same in that my Crohn's is mostly colorectal.

Unlike you I haven't had nausea as a primary symptom though, knock on wood. It's weird/interesting how much variance there is between Crohn's patients... fast food destroys me, but then you hear about people whose safe food is McDonald's :P

When I was first diagnosed I ate Subway for about year. It was the only thing that didn't make me completely sick. Now I can't touch the stuff.

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