Once I realised that I could also tune out tinnitus, I did just that - but a big part of that was just not thinking about it/dwelling on it.
Been nearly 20 years now and tinnitus rarely troubles me, in the way it used to really upset and stress me.
I've got some mild tinnitus. I always wonder if it's my brain listening to itself. That little recursive loop is enough to distract me, even if it's not true.
I’d love to know more about this if you have any info to share.
2. Earbuds fill your ear canal, and as your ear canal flexes slightly due to your heartbeat, the earbud rubs against the skin inside your ear, and you hear that.
No I'm very expensive. Pay up!
(I grew up on 4chan and know better than to check back here for replies. Nice idea though!)
You'll eventually stop thinking about it, and life will go on.
When I first started dealing with tinnitus, it sucked. Until I realized it didn't.
Would I rather not have it? Sure. But life is not near as bad as I thought it would be at first, and I'm perfectly fine several years after it started.
As with a number of things, I've found I can actually move the needle when I give myself grace to fail, as long as I can genuinely try again and resolve to do better. A recent example being stopping telling myself I'm tired in the morning. Such a bad habit that self perpetuated. I was always feeling tired, in part, because I was telling myself I was tired.
Chewing fingernails on the other hand, damn... that hasn't worked so far because I give myself grace, but never really resolve to do better. Someday I'll figure that out.
Of course I don't claim that's the universal fix for everyone. It sure helped me.
A few years later, it has basically zero impact on my life. I am not aware of it 99.9% of the time, and when I am aware of it, I don't go down the same psychological rabbit holes, and I quickly and reliably move out of awareness of it.
Obviously, everyone's experiences and particular symptoms are different. But I think it's really, really important to spread the message that it really can be a mild, almost inconsequential condition, for many people - even anxious, dare-I-say neurotic people.
There was no single silver-bullet treatment path for me, but a combination of very normal, mundane things like therapy, relaxation (massage, hot baths, exercise) and limited use of safe levels of white noise helped me. Perhaps the biggest thing was shrinking my time horizon from "how can I live the rest of my life like this?" to "how can I enjoy today as best as I can?"
The internet is full of horror stories from people, often written during their darkest moments, about how awful it can be. I could easily have written a hopeless, dark, scary account of my symptoms when I was at my lowest points.
Reading such accounts is of absolutely no utility to anyone. If anyone is struggling with this condition, I highly advise you to avoid reading such material at all costs. Try to maintain an awareness of the millions upon millions of people for whom tinnitus is a mild, transitory condition they almost never think about (and, as a consequence, never write about their experiences on the internet)
Some days it's noticeable on its own, and on rare occasions, it's annoying.
I avoid alcohol, caffeine, heavy sodium, and (when possible) heavy stress, since I've heard those might be contributors.
I also try to avoid really loud noises (but that's impossible where I live in the city right now, and is an almost daily 'adventure').
https://generalfuzz.net/acrn/index.html
I also had some other people give feedback that it helped them, so doing a little bit of cheat replying under the top post, in a hope it is useful for some. (I have absolutely no relationship with the target of the link, and I saw there were several paid apps that basically used the same algorithm)
A little anecdata for myself: I have had a mildly higher blood pressure and pushing it down to accepted limits by diet and ~daily 6km running seems to have reduced the incidence - but this is just a piece of personal made data, so FWIW.
Eventually my body got used to the local pollen, thank god. I haven't needed chemicals or lavage for months.
Last bad sickness hit was from Sable and Anti Chamber. There are few other indie games that effect me similarly. I thought it's lack of textures or crosshair in indie games, or may be it's the camera movement or both, not sure. But now, when playing first person games, i find myself worrying if it will make me sick. More I think, more I feel it. Yesterday I felt sick after playing Alien Isolation for the first time. It had textures, a crosshair, but camera was janky which made me worried and more I thought about it, worse it got and I end up deleting the game.
Also, ironically, I just played Alien Isolation, and the camera drove me crazy at first but stopped being a problem altogether after a few hours of gameplay.
Jokes aside, my tinnitus used to bother me horribly. It used to be all I could focus on, not just because it's loud and distracting at times, but because it triggered a severe case of health anxiety². I went through my regular GP, who referred me to an otolaryngologist and audiologist; that person found nothing physically wrong with my ear (which is usually the case for tinnitus) and referred me for an MRI; the MRI threw a big wrench in the works by discovering a brain tumor which turned out to be benign – a simple pituitary tumor which I just need to keep an eye on every few years. But again, still not the cause of the tinnitus.
Anyway, long story short, no cause was ever found for me suddenly developing this pulsatile tinnitus nearly overnight. It took a couple months to adapt to the new, constant sound in my ear, but I hardly notice it anymore unless I'm straining to hear something³. When I'm focusing on something like playing a video game, watching tv or listening to an audiobook, I don't notice the tinnitus at all. If the sound really starts to bug me, I've saved some brown noise tracks on YouTube that are particularly effective at drowning out the frequency of the whooshing sound.
¹ I also have the "regular", high-pitched whistling tinnitus, but I've had that most of my life.
² I've always had a health anxiety, learned behavior from my mother. This post makes me sound like a basket case, but I promise I'm a fully functional adult and these ailments I'm describing are trifles at the moment!
³ My wife and I have started to get into birding, so it does interfere a bit with my ability to hear some birds. More specifically, it interferes with my ability to locate where they are, I can't quite figure out if they're above me or behind me sometimes.
https://blog.klungo.no/2023/09/12/the-washing-machine-in-my-...
Right now I hear it because we're talking about it. In five minutes when I'm back to thinking about work, it will disappear again until the next time I randomly think about it.
I don't think that works for everyone, but it's such a simple thing to try that anyone suffering should see if it works for them.
Did my hearing get worse? No, I was mostly at home.
The problem is my home office is too quiet. So now I open a window or put on some natural sounds or music and it goes away.
Those two things all but cured my tinnitus: 1. not obsessing about it and 2. avoid silent spaces
Blood pressure and muscle tension seem to be primary factors in my perception of tinnitus.
"just don't think about it, bro"
lol - they prescribe opiates for this condition.
noise machines are linked to making it worse. Humans may not be used to "silence" or whatever people are claiming in here, but we're also not used to broad-spectrum noise, either. Nature doesn't sound like a fan, or any other sort of "noise" except for, possibly, a few dBa around the floor of all noise due to echoes and reflections. Do you all ever go outside of the cities?
[0] i consider mine mild, i always know when i'm gunna suffer after a noise, my brain just knows the SPL that will trigger it in a few hours, so i generally try to be asleep before it kicks in. I do get the waves of tinnitus that i think most people say is "mild", it comes and goes; and yeah, that is easy to "ignore". I have friends with it that avoid certain foods and drinks (like red wine and whisky), where a bout of tinnitus escalates into a migraine headache, or worse, a cluster headache.
and forget about the hum the air conditioner in the house makes. Or that buzzing from the lights. hmmm... your computer isn't actually silent, is it?
As a long time sufferer, I want to support the general sentiment of this post, and I hope it helps someone who finds this that is currently suffering. My core message is that managing your psychological response to your condition matters immensely. I've noticed over the years that my perception of my tinnitus gets worse when my stress levels are high, even if for unrelated reasons. For example, reading about this post might remind me of it when I wasn't thinking about it for a long while. And suddenly this might bring back unpleasant feelings I have about it and it might suddenly feel very loud and overpowering when half an hour ago I wasn't even aware of it. But then an hour or two later I'll catch myself having a normal, quiet, unimpeded conversation with someone, which can feel like a contradiction.
Unmanaged, this kind of thing can turn into an unchecked, self reinforcing doom loop that's not always necessary or helpful. As with anxiety (another long term problem I manage), one unhelpful thing doctors might say when you first get tinnitus is that it doesn't go away - this is one of those technically true statements that patients can misinterpret. The reality is that just like anxiety, in many cases there's plenty reason for hope: it's often quite possible to improve quality of life that's mostly the same as it was before. It's still there if you check, and time to time you need to manage it, but also you might go days and weeks without even noticing, living a perfectly normal and happy life rather than a miserable existence.
On the other hand, leaving your primary care doctor with "yup, it's tinnitus" (my interpretation at the time: you're fucked for life, good luck) can lead to deep feelings of despair, panic, lack of sleep, over-sensitivity to noise of any kind even within normal thresholds, and many more terrible things. And "just ignore it, you'll be fine" is trite advice that can be difficult to achieve without help, like telling someone to ignore a siren in the next room. And it might be difficult for others to understand how debilitating it can be. But slowly and step by step it's possible to get there.
Sadly compassionate and competent care for tinnitus, even among audiology specialists, is few and far between and patients are left to suffer and / or try to figure stuff out on their own, which like a hypochondriac on webmd, can leave you feeling even worse. Luckily it is more possible to find tinnitus specific care these days and I encourage you to find a clinic that does this if you can - it's worth traveling for IMHO. There's a cocktail of potential causes that indicate different treaments so take this with a grain of salt but what worked for me was a combination of various things first to manage my current state and give me some relief during my initial crisis state (psychological help with how to deal with the reality of your condition, various things to help mask it and allow me to get normal sleep), clearing out wax (it's hilariously gross and also wild how it can affect your hearing perception and tinnitus in the most unexpected ways), common sense non-doomer information on the nature of the disease, what to do next and how to slowly transition to focusing on normal life ("playing playstation"): doing things with people, being outside, working out, focusing on your interests, as opposed to catastrophizing at home in bed. This feels like a non-cure cure but the results for me are night and day - if it's a placebo, I'll take it. I still have trouble with it time to time, but lead a normal happy life most days.
That aside, while we don't have the technology to make it fully go away yet, there have been a lot of recent changes and advances in our understanding of how it works which might lead to new therapies. Disclaimer: I'm not a doctor and might be butchering this so take this with a grain of salt: There seem to now be competing theories on the exact causes e.g. arguments about whether it's the the little hairs in the ear are sending no signal or incorrect signals. Also a recent understanding that you can have a seemingly unaffected hearing AND a normal audiogram but still have tinnitus is leading people to question if it's a different type of damage (different, larger hairs) that cause it which might mean different therapies. There's promising new treatments like Lenire which seem to be low risk and whose early study results seem to be much more promising than earlier versions of similar ideas (haven't tried it). I wouldn't be shocked if we eventually got much much more in our lifetimes.
TLDR: of course you'd rather not have it - please do be careful in protecting your hearing as much as possible. But if you're at the point where you do have it, just take a bit of solace maybe that it's not always a terrible prognosis and more improvement might be possible than you think. And the psychology and managing my emotional perception of it was very helpful for me. I hope this helps you, dear reader.
I can't comment on how mainstream of a scientific opinion his response is, but I know it certainly reframed the way I thought about my own tinnitus and inspired my original comment, including the Playstation bit. That was a lightbulb moment for me. "Wow, he's right, I NEVER think about tinnitus when I'm otherwise engaged mentally..."