One of my saddest, but also most powerful, raw, and formative memories was watching my grandmother die when I was 12. Her lymphoma had relapsed and she chose to put her effort and energy into preparing for her death instead fighting medically. She was a strong woman and fully prepared her estate. She collected every document, listed every account, and wrote detailed instructions (Later, my dad would still find things like the pinkslip pre-signed and in the glove box of the car when he went to sell it.)
When her time was close, my family pulled me out of school for two weeks and we went to stay with her until she passed. I mostly played in another room, but when it was time, I was called in and we held hands and watched her last breaths, and listened to her death rattle together, and cried together. That was the first time I saw my father cry.
It was tremendously sad, of course, but also beautiful, because it was the culmination of a life well lived. I learned a lot that day about the fleetingness of our short lives , the value of agency, and the human endeavor. It is the greatest gift my grandmother ever gave me and she did it from her deathbed. Sometimes when I lack motivation and struggle, I consider what I would want, think, and wish from my own deathbed. I consider the impact I want to have on my loved ones, and the cultural legacy I want to leave.
It taught me a lot too; that I want to be like your grandmother, and not like my family, when my time comes.
That said, deterioration from dementia is a whole different beast. Fentanyl seems like a quick way to go, but it would be hard deciding when to pull the plug, and how long you have before you lose the option.
These aren't mutually exclusive. It's like saying "I think a huge part of the desire for fashionable clothing isn't even fashion, but the fear of being ostracized or left behind by one's social circle." A natural source of fear and uncertainty is stoked by people who find opportunity to make a buck off it.
"The American Way of Death" is a good book to read in that vein, although it's about the pointless, blindingly expensive ostentation of US burial rituals. The book was very successful and well-regarded; didn't change a thing.
X will make me happy, Im sad because I dont have Y. There are absolutely outside forces pushing this, but there is also a deficit of cultural forces and norms pushing back. Its not that people are being bombed by advertising for expensive burials, but that they have low experience with excellent and cheap alternatives. Human culture is slow to change, and usually does so on the order of decades or generations. Any impact from things like books will be at the margin, especially since most readers are already inclined to agree.
Bless you and her.
Karl Ove Knausgaard starts one of his books off by talking about this exact thing. He made an interesting observation about how we seem to try to keep death at or below ground level (a morgue will never be on the second floor) - literally but also figuratively.
I saw this claim a while back and looked it up and it didn't seem true. Very few people actually refuse non-palliative treatment entirely for cancer. And the few who do refuse are usually not doctors but rather alternative medicine enthusiasts. Modern treatment can extend the lifespan of many of those with terminal cancers for a couple of years with good quality of life, and few say no to that; those years can be very meaningful for many.
What doctors do frequently decline is treatment near the end of life that's overwhelmingly likely to be futile or result in a low quality of life.
Edit to excerpt a great review from Goodreads: "If you think you might get older as time goes by and/or think you might even die at some time (or have relatives or other loved ones to whom this might apply), I urge you to read this book."
My father desires this. He was a nurse for much of my life. He is adamant about two points in regards to his death and the events leading up to it:
1. He will never become a burden.
2. He will not die in a hospital bed.
He believes that when it is his time to go, then it is his time to go. No point in delaying the inevitable. As a nurse, he has seen many patients receive treatments and the outcomes/prognosis that results from said treatments. Based on many of the stories I have heard through out my life, I think I can greatly sympathize with his views. Though, I myself am a bit too neurotic about death to have such a view.
My father has stuck to his guns though. He's in his 70s. Annual checkup? Doesn't do them. He doesn't even know nor care about his blood pressure, cholesterol, etc.. Routine colonoscopy? Never had one.
He's told me since I was young, "The day I can't tie my own shoes is the day I'm calling it quits." I seriously believe him and I have the utmost respect for him too.
Canadian Paralympian: I asked for a disability ramp - and was offered euthanasia
https://www.telegraph.co.uk/world-news/2023/09/02/canada-par...