We sometimes have posts here from patients who are desperate. And everyone dumps on the FDA in those threads.

This is the flip side of that.

This was patients lobbying Congress to skip safeguards. The FDA did not want to do this. https://apnews.com/article/science-business-health-lobbying-...

Now it's just getting worse and worse. ALS patient communities used the questionable approval of Aduhelm by desperate Alzheimer’s patients to strongarm the FDA into approving this. Every junk pharma product is now going to come with an advocacy group that says "let's just try it and see".

Grifter pharma corporations will of course take advantage of this. They'll mobilize patient communities to keep skipping the science. And the result will be more wasted lives and more misallocated resources. Instead of working toward drugs that help people, we'll be working toward drugs that sound good to patient communities and Congress. This is a disaster.

The FDA might be slow. But it's slow and deliberate for a reason.