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Comment by thenerdhead | Hacker News Reader

These numbers don't look so great long term. Especially the no PCC group. The good news is that recent research suggests we can start aggressively targeting virus in trials:

https://www.nature.com/articles/s41590-023-01724-6

https://www.medrxiv.org/content/10.1101/2023.07.27.23293177v...

There are a lot of exciting trials going on for many different antivirals, monoclonal antibodies, immunomodulators/immunotherapy, and even novel molecules to help clear out viral persistence.

I am starting to collect these budding treatments & patient stories as they come on a website here:

https://www.lctreatments.com/

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There was some recent study where most patients who received monoclonal antibodies regressed rapidly so I am not sure that's a good pathway. The hypothesis is that the covid antibodies are quite nasty so the body creates anti-antibodies that in turn resemble the original virus wrt certain effects and one ends up in a cycle of doom that first needs to be broken before one starts getting better.

Link the study.

Can't find the paper as it was in 2021 but here is from someone who did it:

https://old.reddit.com/r/covidlonghaulers/comments/1acpmjc/i...

Are you referring to this preprint?

https://www.biorxiv.org/content/10.1101/2023.11.21.567575v1

Regardless, you trust a single redditor's comments with no verifiable proof over peer-reviewed science and on-going clinical trials?

It's one datapoint. Not sure why I should by default distrust somebody whose life was ruined by it and is essentially involved in a human-style reinforcement learning crowdsourcing trying to figure out how to recover by sharing what worked and what didn't.

Trust but verify comes to mind here. I have personally tried to verify this because I work on a project to bring all stories(good, bad, neutral) on novel therapeutics + Long COVID and I have yet to be successful in verifying this with the poster over a couple months.

They told me previously to reach out to a specific Long COVID advocacy group and when I did, that group replied with very limited data as no one had really tried it. Now they are claiming it is a Facebook group with this new post, so something is not adding up here. Let alone all the other public anecdotal and research evidence suggesting the opposite or being neutral. I will continue to try to verify, but I hope you can see why we cannot just trust what is said on the internet as truth.

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