My son turned 18 this week, and his condition is similar, with additional physical limitations (severe CP via PVL)

Parenting him has been the hardest thing I’ve ever done, but there have also been moments of joy.

Hang in there, take care of yourself, and get as much help as you can. Being a carer is a huge job.

I wrote a little here: https://x.com/dnf/status/1746775939961528693?s=20