Just because the medical establishment doesn't have answers doesn't mean that someone outside of the establishment does. It sucks, but sometimes no one has an answer, and it's better to accept that than to listen to whoever claims to know.
All I can see is wasted time and effort, but as a person with a lifelong (supposedly) incurable illness, it’s time well spent. I’d rather struggle and fail than accept my fate.
I think it’s healthier on a personal and societal level if we try and fail instead of quit. Worst case we learn what doesn’t work.
This is coming from someone facing a life-threatening illness. I hear lots of shit advice all the time. I've chosen to separate myself from support groups that circulate dangerous ideas, and I think I'm better off.
The alternative isn't giving up. It's doing what we can with what we actually know based on science-based medicine. That might include seeking a second, third, etc. credible opinion.
Unfortunately, there isn't always an answer. Countless people suffer from conditions that no one understands.
Just because they don't have an answer doesn't mean no one has an answer.
We've received many helpful tips on things to try from others suffering with the same symptoms. We have brains, and an ability to use scientific method to investigate for ourselves what works for us. Someone may say, "try this diet change - it worked for me". You don't need to be a doctor to try that.
This grounding thing doesn't seem hard to try out, and there's no obvious hazard with trying it.
And again, maybe no one has answers. Answering why a condition exists might not even lead to a cure. In the end, it might be better to spend more energy managing symptoms than seeking answers. That sounds pessimistic but it's also pragmatic.