The cynic in me says that it was probably priced to cost exactly the same as the expected lifetime expense of treating of the disease.
I'm not arguing this is true, but I wouldn't accept a counterargument based on "but it's people, it's people, think of the children"
- Most formal drug research, today, is already not worthwhile. The norm is that you spend several billion dollars and recover nothing.
- Most achievements that were worthwhile in retrospect were not worthwhile prospectively. Therefore it is not obvious that things need to be worthwhile prospectively in order to be done. Going into a career as a rock star is, objectively, stupid. But we have a huge supply of wannabe rock stars anyway.