I’ll never be an astronaut
shaunoconnell.com
shaunoconnell.com
Until this year he would always swears that he was the unluckiest person. Now he’s 82 and still alive after all this and he feels lucky.
Go to your doctors regularly, get screened, and don’t put off procedures until they’re an emergency.
When on a religious trip to Israel, his cardiologist placed a written prayer in the Western Wall during one of the scariest periods for my father.
I'm glad the cardiologist has developed a way to manage the suffering we all go through in this hard life, but his delusions about some deity reading a piece of paper he stuck in the wall had nothing to do with your father's recovery.
This kind of base anti-theism is counterproductive and ultimately meaningless.
On the contrary, it's counterproductive to be such a horrible human being that you disregard the efforts of the people who saved the life of your father. My calling that out and trying to shame that horrible behaviour is very meaningful. If I'm successful, the world will be improved.
https://www.healthcare.gov/preventive-care-adults/
There is no reliable evidence that going for regular doctor visits improves outcomes for healthy adults. Obviously if someone has a known heart condition then their doctors may recommend more frequent follow-up care but for the rest of us the old recommendation to get an annual physical exam no longer applies.
I underwent mitral valve surgery this summer due to mitral insufficiency. Fortunately the surgeon was able to repair my heart valve using a Physioring. This means that I will not need life long warfarin treatment, only 3 months post surgery (which is soon up).
When I woke up after the surgery my first thought was "I can no longer feel my heart beat". Before due to the insufficiency my heart worked hard and I could mostly feel every heart beat even at rest.
Now that its been a few months I'm feeling so much better than before the surgery - like I've been given my life and a future back.
Without the surgery I would have developed heart failure and died in a few years time. Now I have good odds at making it to retirement age and hopefully even more. Certainly a humbling thought.
The mechanical valve was the best option for me as an active young person because it should last my whole life. Tissue values wear out in about ~15 years from what I've read. Sometimes closer to 10 if you are an active person. The warfarin and INR management is a little bit of a bummer, but I was provided with an INR testing device free of charge, which was rad.
I also wrote a blog post[2] about some of my experiences, although I've yet to write anything about the time post-op.
[1]: https://en.wikipedia.org/wiki/Bentall_procedure
[2]: https://finn.lesueur.nz/posts/a-heart-murmur/As for the annoying: nah. It never bothered me, although I've been told that some people find it hard to get used to. Apparently, I made a groan of realisation in ICU post-surgery when my partner described the high pitch metallic clock/watch ticking noise to my parents to help them identify it. My partner pretends to be annoyed by it, but she doesn't _really_ mind.
I understand the bummer that warfarin can be. I have two pieces of advice.
1. Don’t diet the dose, dose the diet. In other words, don’t try to adjust what and how you eat to fit the mg of warfarin you are taking every week.
2. I believe a large percentage of what you hear regarding warfarin is ridiculously overblown and I almost never place limits on what I do because of some fear of a bleeding event (within reason, of course.)
Re sport: I'm not too concerned about it, honestly. I do a lot of backcountry adventuring, rock climbing and pack rafting and I'm not about to stop because of an elevated increase bleed risk. I won't push it right to the edge, but I'll keep enjoying life.
Re diet: I agree! Drastically altering my diet isn't something I particularly want to do. I'm quite happy to adjust my dose as necessary.
Meanwhile, I’m a land whale that’s been CT scanned and been told by a frequent NYT contributing cardiologist “I have no explanation for how a man your size has such a healthy heart.”
Genetics, yo.
This and aneurysms make me value the small things in life - you could fall down and die any minute.
I hope the sound of the valve will fade away!
He was in terrific shape, and just dropped dead.
I know someone else that was also in great shape (AT through-hiker), and died of a brain aneurysm. They found him dead in his RV, in Vermont.
We all have today, and right now, is the only guarantee.
I also know folks that have very bad quality of life, yet somehow, manage to have a great attitude.
I had my pulmonary valve replaced when I was 13 with a porcine (pig) valve. True, they don’t last forever, but they can last a good two decades before you need to exchange one out. My cardiologist, as far as I know, plans to use another one for my next surgery.
My heart is now considered too damaged to get a more modern version, even if there was a big improvement (unlikely). The flow control and stress testing that has been done on synthetics make them far superior to organics, among other features like the multi-leaf design that makes blood thinners a formality via FDA blanket process rules for synthetic approval.
I'm really surprised that anyone recommends organics for aortas or even chooses to have them. To continue the rather opulent lifestyles that celebrities/politicians might maintain, there may be a narcissistic belief they can stave off the inevitable growing handful of pills they need to take every day to soldier on. Good luck to each and every one.
I am fairly active. I chose the bio because I knew I would have trouble regulating the thinners. The tissue is chemically treated in the newer valves to increase their life span (maybe). When I get this valve replaced they can insert the new valve within the old using TAVR which doesn't require them to open your chest. If my valve last long enough I figure they will have new better ones using carbon synthetics.[1]
That said, there are great cardiac surgery hospitals on the continent that take private payers. He could get patched up near immediately for a small fraction of the price cited in the article.
I was going to write him specific information but his "contact" page doesn't have an email address.
I honestly think the hardest part is worrying about how much my spouse worries.
Hopefully Shaun gets his surgery, and recovers well (took me about 2.5 months to get back to relative norma0lness).
May not be a software engineer, but they have an interesting job.
£25k is definitely low though.
They could be from a country with a lost CoL so $28k is a huge deal, they could be living the life they want doing a job they love, etc... Just so happens some future tech is interesting enough that they wish they could afford that too. Not everyone is in tech for the FAANG bucks!
Although if GP wishes they could earn more I assume any account holder on HN is technical enough to find a remote job paying more than that if they wanted.
Full self driving would complete change everything. I could look at jobs I've never even thought about, because of the need for transportation.
You want to be a janitor or a deputy Vice Provost or something to work at a college.
Moreover, I believe he had a really bad time there because the population in the base was mostly military and they treated him like shit in the most military bootcamp style with physical aggressions and such. So, he ended up not completing the whole term. (This probably will depend on the country of course).
(Source: I am an Oxford resident.)
[1] https://brr.fyi/
If you do embedded software/embedded hardware (microcontrollers, FPGA, kernel dev kinda stuff), you'd probably have a spot with the experiment operators. Maintaining the experiments generally requires a decent bit of low level software and hardware experience even if you aren't necessarily sitting down and coding every day.
And if you are good with interpreting/processing data you may also still be able to land a seat with the experiment operators since they do that as well.
Or if you have Ops/DevOps, SysAdmin, or DB Admin experience, you likely could secure a slot in IT.
You likely wouldn't get the job the first time around but if you keep submitting applications, eventually you are likely to secure a job down on the ice.
I am told replacement surgeries can be done via catheter, sparing the much larger risk in have the chest cracked open.
A huge thank you to SNS, the portuguese NHS. All this was done free of charges. It gets a bad rep from some things that don’t work well, but I only have good things to say.
A year later I was preparing our 1 year old party and had a call from a friend which had a baby born with a much severe heart condition. He didn’t survive the required operation and I really felt for him. It messed me up. We had been in the same spot but I had been very lucky. Still am.
Most of the time you don't, but sometimes you get lucky. When Neil Clarke had his "widowmaker" heart attack he was at a conference down the street from a hospital[0]. In another case, an new father suffered an aortic dissection walking in the front door of Brigham and Women's Hospital[1].
[0] http://neil-clarke.com/the-day-it-nearly-ended/ [1] https://bwhpublicationsarchives.org/DisplayBulletin.aspx?art...
Bob Odenkirk was also very lucky that through a set of unusual circumstances, there was an AED available when he had a heart attack on set:
> Rosa Estrada — we were very lucky that this woman was nearby because she knew how to do CPR properly, and she had the AED [defibrillator] in her car, and she only had it in her car because she was returning it to somebody who she borrowed [it from]. It was a total crazy coincidence that she had put it in her car, and I guess she'd had tried to return it, but the friend wasn't home. Otherwise she wouldn't have had it either. And so it's only because of that circumstance that it was in the trunk of her car. And I'm sure that helped me immensely. I mean, the CPR is number one, but the fact is, I didn't get a heart rate for 18 minutes after this started, and that's a long time.
https://www.npr.org/2022/07/25/1112731181/better-call-saul-b...
Without looking at the statistics, I wonder how many lives can be saved if there are enough people trained to use AED and provide CPR considering in a lot of areas it can be a while before ambulance shows up
If I recall, I think we practiced with a dummy one during lifeguard training, but they are more ore less automated and a voice walks you through the process. I think most people would be able to use one successfully, without any prior training.
Not to be morbid, but every time a patient dies before this surgery, the NHS saves £50-100,000. So is it really a successful system if the only way to make the budget work is letting folks die? Why on earth would the author not be gleefully prepared to pump a little bit, or a lot, of his private funds into this system in order to improve on his chances of survival?
The budget is part of the system. If you assume unlimited resources, then every system will work flawlessly.
You know what’s also common sense? That death isn’t a good thing. More death = worse society. Bad society = no money.
Feel free to elaborate on what your common sense dictates as a solution.
> If hip, hernia and cataract waiting lists had a similar mortality rate then tens of thousands would die before they got their op.
For these other types of operations there can be very long waiting lists, but these are not conditions from which people die suddenly without warning.
The NHS has its problems, but I, for one, am glad that if I get a life-threatening condition I will be treated according to my need without having to bankrupt myself in the process. Additionally, I'm glad the insurance companies don't drive the pricing of quite cost effective drugs and treatments until they are out of range of the uninsured, even though they could easily be priced affordably.
Regarding the NHS you are falling victim to the binary choice fallacy. It is not a strict choice between NHS’s model and the American hyper privatized healthcare. Where I’m writing this, Taiwan, there is a first-class healthcare system that has national single-payer insurance for all residents (only $27/mo!!), and generally no waiting list and patients can normally see any specialist they wish with walk-in appointments during usual working hours.
You can have your cake and eat it too.
I have friends (Americans) who have had procedures recently in South Korea, Turkiye, and Germany. Sometimes it's just easier and faster, and isn't that expensive even if you don't use insurance.
Perhaps the actuarial data is hard to collect, but I suspect it would be a booming business as most countries with socialised system seem to be heading towards a total decline, if not outright collapse.
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[1] https://nationalpost.com/news/canada/b-c-upholds-ban-on-priv...
You'd be amazed by how few people in the UK understand this.
How?
At 27 USD/month/person, are you sure you're not failing to account for taxes and other government funding for healthcare?
Don't get me wrong. Healthcare could be better and cheaper. We could train more doctors to lower wages :)
But healthcare and care in general is a hard place to increase productivity. New treatments and drugs help, but anything advanced usually have to involve humans.
They start by not paying the insane wages the rest of the first world has normalized. There is no reason a typical doctor should be expecting half a million $$ in total compensation.
They also cut out a lot of middlemen. No private insurance. Doctors offices are also pharmacies. No domestic pharma industry abusing the paten system to extract rents from medications. Etc.
Yes, but let's be clear: It's not 27 USD / month per capita.
I live in Denmark with public heathcare, it's not horrible, but wait times for non-critical things are longer than it was in the US (with a great insurance). Not that it's been a huge issue for me.
In any case, I'm pretty sure our healthcare system is more than 27 USD/month per capita :D
A random search for healthcare expenditure puts the number around 650 USD/month per capita (probably you can find a different number and make it larger/smaller, so I'd take this as a ballpark figure).
[1] 28K new doctors are minted in the US each year. [2] Predicted shortfall of doctors up 124K by 2034
[1] https://www.google.com/search?q=how+many+doctors+graduate+ea...
[2] https://www.aamc.org/news/aging-patients-and-doctors-drive-n...
There's a marginal dollar cost on saving one extra life, versus not saving it. It's not that we're out of people to save, it's just not in the budget to save the next one. The one more.
You can contribute using generosity.
The growing assortment of treatments to combat issues that arise naturally through aging gave rise to the expectation that we can live longer. Technically, that’s true, but the collective cost of care starts to go exponential. At some point, we must acknowledge that we will go bankrupt trying to save everyone.
I wish there was a way for people to check out before they become such a burden on society. Until then, we had better make peace with the reality that “death panels” are choosing for us, because we as a civilization can’t afford for everyone to live their longest possible life.
Here's the logic. Budgeting doesn't suddenly disappear and resources don't suddenly become infinite when healthcare moves from insurance companies to government. People who bash the NHS as a concept are people who prefer insurers to budget their healthcare instead of civil servants. Insurers are also death panels.
Healthcare often uses "quality-adjusted life years", where the value of a medical intervention is judged by the amount and quality of the life years gained by doing the intervention. Once you set a value on a life year, it becomes a simple calculation whether the treatment is worth it. $5000 operation to save a newborn baby? Obviously worth it. $10M so a 90-year-old can live three more months? Yeah, not going to happen.
The best part is that you can apply a similar principle to other things. For example, at a certain point you gain more quality-adjusted life year per $ if you spend it on non-healthcare things, such as safer roads, better education, preventing homelessness, and fighting crime.
I'm not sure though how much elasticity there is in people's willingness to contribute more in response to more effective medical interventions. Setting a value on a life-year makes sense when choosing intervention, but individuals looking at their taxes or charitable contributions don't have a step-change reaction where they're happy to give without limits to the $X QALY opportunity until it becomes $X+1
I do think you have that budget in a very real sense, and I'm not sure I know exactly how sensitive it is to the effectiveness of the interventions, especially as you expand out. I'd argue that the current price of a life year still seems relatively cheap, but the healthcare system does not often complain from being inundated with too much funding.
> $5000 operation to save a
> newborn baby? Obviously
> worth it.
Obviously? A 10 year old, sure, because you've sunk a lot of money into education etc. for that individual already.But while any given newborn has a lifetime of tax paying ahead of them, they're also easy to replace.
If you made this an auction I'd bet you'd get at least two couples willing to produce newborns within a year for $2500 each.
The people dying of aortic stenosis have already completed a large percent of their lifetime contributions and may even be into the net negative territory (when you're retired and society has to take care of you).
I was sure you’d be wrong here, as congenital stenosis is a thing. You were right - shows what you learn working in a centre when congenital disease is a specialty.
Average age of death is in 70s.
If anything, the $10 million + inflation is an understatement. There’s no end to the potential monetary value of increased quality of life, and there’s no end to the monetary loss of decreased quality of life.
The NHS doesn't get to make that decision. The problem is that it has seen literally a decade of budget cuts, despite a rapidly aging population. Compared to countries like France and Germany, the UK has far fewer doctors and nurses per capita.
The Tories are intentionally trying to make the NHS fail by essentially strangling it as they really want to privatize it. As the decades before have shown, the NHS can operate perfectly well when it is supplied with a proper budget.
Your looking at this too narrowly. There is a point when the NHS saves money by having patients die - this is true in every other health system too. But having a young tax payer die loses them money in terms of future tax take. One can do the equation and it would be something like healthcare cost versus tax take multiplied by years of life left paying tax.
"The budget" isn't a constant. It's something that politicians have control over.
The fact is the Tory party has been kneecapping the NHS for nearly a decade now - austerity measures to underfund it, and brexit which cut off a lot of talent.
The current state is purely a result of politics - and likely lobbying efforts to change the UK system to a more profitable one.
Heartfelt (no pun intended) get-well wishes to the author. May he be able to send many more excellent write-ups.