Cue insurance companies cross-referencing with the likes of 23-and-me to deny life insurance and LTD coverage
(Edit: per tssva—LTD & life are generally state laws, GINA is health ins and employment)
Or rather, US does not have health care.
It’s almost deterministic at this point, and you see how they did it for clawing back reproductive rights.
And this issue is obscure enough for a small enough current population, that you would not be able to actually build a robust counter protest in any kind of sensible way.
So really all it would take is a handful of just Millionaires to care about this problem to throw — let’s call it $10 million - at lobbying in order to make it go their direction.
And fully agree on the DP.
I caught several downvotes and you can't downvote replies, so I was talking to the audience on the second comment.
The 1st state I checked to validate that, my own, doesn't. The state level laws much like the GINA act only cover employment and health insurance. There is a newly enacted law preventing consumer genetic testing companies from disclosing results without consumer consent, but nothing stopping an insurance company requiring consent for access or requiring their own genetic testing before issuing life or disability insurance. Based upon this I'm not comforted by the assertion that "pretty much every state has a law".
Even if you didn’t consent, genetic genealogy can still be used to triangulate your genome from relatives of yours who do consent. This is still a manual process for now, but it’s very likely that a CODIS-like system to automate DNA triangulation for purposes of fingerprint search will be implemented soon. Only a small step from there to insurance companies being able to deny you coverage based on an “sub-clinical family history” of something.
The term "sub-clinical" means "something that has not yet caused you any problems bad enough that you mention them to a doctor, and therefore never makes it into your medical history; and which also would not yet be revealed by a medical examination."
To be clear, a "sub-clinical family history", then, isn't information about your sub-clinical conditions attained from medical data about your family's clinical interactions (that would be a regular family history!); rather, it's information about your clinical or sub-clinical conditions, deduced through triangulation of your (potentially quite distant!) relatives' sub-clinical conditions, which were in turn discovered through genetic screening of those distant relatives, that they themselves did consent to, as some presumed-boilerplate when submitting their DNA to ancestry websites and the like.
There is currently no way for insurance companies to be aware of your "sub-clinical family history" besides just asking you. With automated triangulated genetic screening, they would have a way to get around asking you.
https://havenlife.com/blog/family-medical-history-life-insur...
They also take into account smoking. Playing devil's advocate if a car insurance company can charge you a higher premium because you are male why shouldn't a life insurance company use your genetic code?
I can't trust such people to put in place and operate any system that truly protects medical privacy.
After the very recent forced masking and "vaccine passports" debacles (which inherently forced the public disclosure of what should be private medical information), and the related coercion and forcing of unwanted medical procedures that such "professionals" advocated for and participated in, it should be clear that they don't take medical privacy seriously.
Oh, you're one of those
My genome is publically available and from what I can tell there is no extra cost to me over the past 10+ years that it's been around.
In the past we have carried out studies with partners where we shared individual level data and obtained consent to do so. We recruited people with certain diseases to participate in those studies. The data was always de-identified and for research use only.
https://www.gsk.com/en-gb/media/press-releases/gsk-and-23and...
Details (and reading comprehension) matter