4 in 5 Americans who need insulin have taken on credit card debt to cover cost
neverleave.substack.com
neverleave.substack.com
They have the funds, our government just isn't competent enough to deliver it.
That's one and a half premature babies[0], or ten c-section babies. That number could be low or high depending on the average number of babies that OB is working with.
[0] "a premature baby spends an average of 25.4 days in a speciality care nursery at an average cost of $144,692" - https://www.oviahealth.com/blog/the-real-cost-of-preterm-bir...
[1] "A cesarean section (C-section) is much more expensive, costing an average of $22,646 including standard predelivery and postdelivery expenses." - https://www.valuepenguin.com/cost-childbirth-health-insuranc...
Student loan debt isn't even a big factor in this because of the sheer size of the salary gap. $500k loan gets paid off fast when you make $300k+, and you get that salary for life whereas the loan only weighs you down for the first 5-10 years.
[1] https://www.healthcareers.nhs.uk/explore-roles/doctors/pay-d...
https://www.nerdwallet.com/article/small-business/how-much-i...
I'm not at all shocked someone who cuts people open and removes or adds objects has a high liability insurance.
I have no source for this, but blaming medical system costs on liability insurance feels like a way of blaming the patients instead of the system. "If only greedy people were not trying to get rich quick off lawsuits."
Compare that to a programmer, assume 4 years of undergrad, and then you get out making $100K easily - especially if you were a very smart student, probably much more (i.e. someone that was smart enough to be a doctor or a programmer), not even accounting for raises and inflation, 6-7 years at $100K and also assume 400K for med school loans and the programmer is already almost $1Million ahead of the doctor at year 7.
Over the long haul the doctor will likely do better, but it will take years to catch up once you factor in the huge costs a doctor has vs a programmer - I for one am glad only really smart people can become MDs.
They know exactly what the downstream effects of these programs will be. Regulatory capture is a well attested phenomenon, so I’m skeptical of any claims that all the Byzantine policies that just so happen to favor big business came about haphazardly
But I do believe many government regulations and laws that may seem like sphaghetti against the wall at first are actually very intentional and lucrative to someone.
A lot of things happen that way, just horse trading and trying to get re-elected.
No. The health insurance companies spend a lot of effort and influence on lobbying to make sure they are there in the loop to cash in on every health care transaction. It's all very intentional.
https://content.naic.org/sites/default/files/inline-files/20...
There are so many times in the history of American healthcare history that someone had an idea for a fix, sold it to their voters, wrote the law, got it passed, and then it flopped.
The insurance industry profit is not a meaningful number in this context.
Profits are only what is left over after all expenses are deducted. These expenses include all the operating costs of the medical insurance industry (salaries of all employees, massive CEO bonuses, real estate costs and on and on and on).
Every penny of those costs are unnecessary overhead. All those (hundreds of) thousands of administrators and CEOs getting bonuses are not providing any health care to anyone, only adding overhead to the system. They feed off the work of doctors, nurses and medical staff but don't provide any value.
So the number to look at is the total gross revenue of all medical insurance companies. All that money could be saved by simply eliminating the insurance industry middleman and paying medical staff (those who actually directly contribute to providing health care) directly.
The reason it hasn't been fixed is that there are powerful people that don't want it to be fixed.
I could go on, but the point is a lot of fixes just aren’t sexy, we elect dummies, and well intentioned people make mistakes.
You should read this before claiming I show "total ignorance of the history of the healthcare system in America". Stop making excuses for shitty politicians.
I'll quote some for you to start:
>By the 1990s, the Blues, which offered insurance in all 50 states, were hemorrhaging money, having been left to cover the sickest patients. In 1994, after state directors rebelled, the Blues’ board relented and allowed member plans to become for-profit insurers. Their primary motivation was not to charge patients more, but to gain access to the stock market to raise some quick cash to erase deficits. This was the final nail in the coffin of old-fashioned noble-minded health insurance.
>WellPoint’s first priority appears no longer to be its patient/ members or even the companies and unions that choose it as an insurer, but instead its shareholders and investors. As in any for-profit enterprise, executives are compensated for how well they perform that financial function and are compensated well. In 2010 WellPoint had intended to hike premiums in California by 39 percent, before an attorney general effectively nixed the plan. CEO Angela Braly received total annual compensation of more than $20 million in 2012, despite the fact that she resigned under pressure that year because the company revenues were down. Joe Swedish, the new CEO appointed in 2013, is a longtime health care executive who served at the for-profit Hospital Corporation of America. His starting salary and bonus totaled about $5 million, not including stock options.
>To express their collective frustration, members gathered signatures for a MoveOn.org petition: “Anthem Blue Cross: Stop Playing Politics with Our Premiums.” They urged their insurer “to stop spending corporate funds on political campaigns, disclose everything it has spent directly or indirectly on political campaigns, and use the money to lower rates for Anthem policy-holders and California taxpayers.”
>To increase profits, all insurers, regardless of their tax status, have been spending less on care in recent years and more on activities like marketing, lobbying, administration and the paying out of dividends.
- artificial limit on number of doctors
- unlimited lobbying by pharma companies
- unlimited advertising for said companies
- single payer system gutted every time
- insurance company lobbying prevents insurance across state lines
- on and on
Edit: since I've being downvoted, I just wanted to clarify I'm neither agreeing with or disagreeing with the assertion that the U.S. spends enough to have the best medical system. I'm just highlighting the fact that, in general, highly skilled labor in the U.S. often earns 3-5x (or more) than highly skilled labor in other countries.
1. https://journalofethics.ama-assn.org/article/challenging-med...
The only place in the US government that controls its formulary is the VA/Tricare and they have remarkable success in managing costs there. Otherwise, you mistakenly believe the government controls these costs. We have incompetent or corrupt private industry, and a major party that is eager to deregulate things further.
Citation Needed.
Prior Authorizations and other "misfeatures" ensure this private health insurance blocks necessary treatment and captures the "savings" at patient's health and sometimes, their lives, expense.
Pretty sure this has been forever debunked. Not sure why you’re wanting to be a end-stage capitalism apologist
[0]https://en.wikipedia.org/wiki/Children%27s_Health_Insurance_...
Back to your first point: this is exactly about companies charging crazy markups. Look at https://costplusdrugs.com/ for some examples of how bad it is.
Now, we all understand that R&D and studies for safety are necessary and expensive, and not every drug succeeds. Every successful drug pays those as amortized costs, it's not simply a matter of manufacturing and raw materials.
However, https://en.wikipedia.org/wiki/Martin_Shkreli was a famous and egregious example vis a vis Daraprim of a common practice. Further, you have increases for non-elastic needs (insulin, epi-pens) that far exceeds increases to increases in manufacturing costs. Then you ones like Solvaldi that are just priced on the max the market will bear: https://www.fiercepharma.com/financials/gilead-prices-hep-c-... ... this is not all about recovering development and testing costs, obviously.
I have no idea on what the costs to develop, produce, and distribute these insulins is, or even what is being charged for them. Maybe it is too high, but it is not so simple as a generic 5$ per vial drug.
World would be just fine if US healthcare wouldn't be such a bad joke on democracy, freedom and all other things that seem to win US elections but actually matter little where they should.
But I also think "the government" shouldn't "deliver medical treatment" - I suppose they could mean "in deciding how to spend tax dollars to get medical treatment delivered."
In which case, I agree that is not their competency.
and that comes from the people and their representatives
https://www.statista.com/statistics/257364/top-lobbying-indu...
If the US government was really efficient, US citizens would be paying big pharma and the military industrial complex every day in order to go to work.
You don't need more efficiency, you need less corruption. And that starts by severely curtailing lobbying.
US ranks 46th on the life expectancy. Not saying that's a perfect metric but's a strong signal.
https://www.worldometers.info/demographics/life-expectancy/
- Cost-plus contracts disincentive cost-benefit value delivery. - Costly healthcare disincentive use of health services.
It's a system that combines the worse of public and private healthcare systems.
This smelled fishy to me so I looked a little further into the numbers. The page linking to the study says that it involved 1,000 insured participants and 1,000 uninsured. So right off the bat, unless exactly 50% of the population is insured/uninsured, you can't really extrapolate exact numbers from this survey, unless they gave you results broken down by insurance status.
According to https://www.cdc.gov/diabetes/data/statistics-report/diagnose..., about 46% of diagnosed diabetes cases are in people >65, meaning covered by medicare. I'd assume that at least a good chunk of people <65 have insurance, meaning this survey is completely unrepresentative from the start.
Don't take any of this to mean that I don't think the price of insulin is too high. It certainly is. But this survey is misleading at best.
I'm not in any way saying insulin prices aren't an issue, but at the same time, I don't think misleading headlines are helpful either.
https://www.aha.org/news/headline/2021-11-17-cdc-reports-uni...
Regular Medicare doesn't cover insulin. Beneficiaries would have to enroll in a drug plan.
T2 diabetes gets more common in the overweight and those unable to exercise because of mobility issues increasing their levels of insulin resistance, hence the rise you see in the elderly.
Yup.
Modern insulin analogs were not invented 100 years ago.
Diabetes is a very old disease that ironically is pushing the limits of sensor fusion, but it is very poorly understood by people outside of the Type 1 community.
I personally wish these two diseases were completely renamed as it does a disservice to both Type 1 and 2 patients.
"Unlike many pharmaceutical markets, which see the entry of generic competitors, no generic or biosimilar insulins have been approved in the United States.68 This is not due to patent protection of the existing products.69 The patents for the majority of human and analog insulin products have expired or are about to expire.70 At the end of 2015, 11 insulin products had no associated patents or exclusivities.71 This number has since risen to approximately 17 by July 2019 (including those products where only the insulin pen device is protected), shown in Table 2."
Knox, Ryan. “Insulin Insulated: Barriers to Competition and Affordability in the United States Insulin Market.” Journal of Law and the Biosciences 7, no. 1 (July 25, 2020): lsaa061. https://doi.org/10.1093/jlb/lsaa061.
This is corroborated by Health Access International's deep dive from several years ago:
"There are no patents on any formulations of human insulins. Based on the filing date and a 20 year patent period, patents on analogue insulins already on the market in the US and Canada have expired or will soon expire in these countries and elsewhere (Figure 1)."
https://haiweb.org/wp-content/uploads/2015/05/HAI_ACCISS_fac...
https://haiweb.org/wp-content/uploads/2016/04/ACCISS-PatentR...
And yet, despite this, the US remains alone in having prices not only multiple times the cost of any other country, but increasing at an alarming rate (tripling over the past deacde) while prices stay the same or fall elsewhere. There's zero shortage of analysis and ink spilled in both the popular press or in academic analysis/ peer-reviewed press on why markets are so fucked in the US pharmaceuticals, so I just assume any talk about how R&D cost recovery happens to only be a thing in the US (and somehow accelerating despite new products not being released) to be either extreme low effort or just plain bad-faith (which are you anon?), but for those reading along that might be interested, a few places to start to do their own research if they really care about the topic:
Mulcahy, Andrew W., Daniel Schwam, and Nathaniel Edenfield. “Comparing Insulin Prices in the United States to Other Countries: Results from a Price Index Analysis.” RAND Corporation, October 6, 2020. https://www.rand.org/pubs/research_reports/RRA788-1.html.
Hirsch, Irl B. “Insulin in America: A Right or a Privilege?” Diabetes Spectrum : A Publication of the American Diabetes Association 29, no. 3 (August 2016): 130–32. https://doi.org/10.2337/diaspect.29.3.130.
Schneider, Tyler, Tara Gomes, Kaleen N. Hayes, Katie J. Suda, and Mina Tadrous. “Comparisons of Insulin Spending and Price Between Canada and the United States.” Mayo Clinic Proceedings 97, no. 3 (March 1, 2022): 573–78. https://doi.org/10.1016/j.mayocp.2021.11.028.
Herman, William H., and Shihchen Kuo. “100 Years of Insulin: Why Is Insulin So Expensive and What Can Be Done to Control Its Cost?” Endocrinology and Metabolism Clinics of North America 50, no. 3S (September 2021): e21–34. https://doi.org/10.1016/j.ecl.2021.09.001.
Luo, Jing, and Aaron S Kesselheim. “Evolution of Insulin Patents and Market Exclusivities in the USA.” The Lancet Diabetes & Endocrinology 3, no. 11 (November 2015): 835–37. https://doi.org/10.1016/S2213-8587(15)00364-2.
You can have the ‘old insulin’ for something like 25$ / 1k units. But it’s very hard to use relative to modern analogs, so people prefer modern analogs.
Edit: Minus points for facts that disrupt the narrative. I love it.
https://medcitynews.com/2019/03/lilly-to-introduce-lower-pri...
The problem is that there isn't competition on the market for this product. The Open Insulin people were trying to make it available to the public but they are stuck trying to get through the regulation.
It's entirely possible that if we got rid of the regulation then the whole problem takes care of itself and it becomes a non issue.
Humalog and other types of the same exact insulin are pennies on the dollar in other countries with very different healthcare compensation programs between the vendors and purchases. It's bizarre to say the least.
But basically you are correct that regulation is the largest barrier to price reductions. Patients pay the price of FDA regulation (for better or worse). That’s not really the drug companies fault.
Are you actually suggesting people are going into debt [1] and killing themselves[2] just because they prefer modern analogs?
[1] this post
[2] https://www.independent.co.uk/news/world/americas/us-politic...
The new stuff lets you eat a wider range of foods without having to time everything precisely or worry as much. about hypoglycemic events.
I don’t know if that’s a preference or if it reflects the way Drs treat T1 patients.
>I don’t know if that’s a preference
so which one is it?
Cuba, of all places, have pretty great medical R&D?
Don’t think your statement means too much.
In the long run, these drugs go off patent and become low cost and highly available.
Yes, people today will struggle, maybe even die today. But in a generation more people will thrive.
BioNTech SE
An der Goldgrube 12
55131 Mainz, Germany
I'm all for giving the US credit for healthcare R&D, there's a lot of credit due. But don't just take it for granted, or you'll miss the signs that point in other directions.Specifically with COVID-19, there was a lot of global collaboration.
But that said, the key point remains; the US is where the money is. The US underwrote the mRNA platforms with a guarantee of 10 billion in revenue while the EU haggled with AZ for like 1 billion.
In the process, the US developed an entire scalable delivery pipeline for mRNA that didn’t exist prior.
There wasn't anyone in government that decided hospitals and insurance companies need to have record profits and price gouge their customers. It happened, because entrenched interests lobbied government officials to enact such legislature.
Business is the one that perverse incentives through pressure on government. It doesn't originate in government spontaneously.
> Some would say that crying "market failure" isn't a legitimate criticism.
Saying market failure isn't a criticism in and of itself, it's a statement of fact. It arises whenever the market is unable (for a multitude of reasons) to distribute the services to the end consumers (e.g. health care recipients) in an effective manner.
For example, saying that "tying health care to employment creates perverse incentives, because policymakers automatically assume that more people are covered than actually are, since policymakers themselves are employed" is a criticism (without judging how valid/accurate it is).
Broadly saying "market failure" is not.
Sugar tax of 1c per 1g added sugar is another easy solution. Use the proceeds to reduce sales taxes on food and drink generally.
I argue the opposite in that Nightscout and other initiatives that predominately serve the Type 1 community help push the advancement of monitoring, etc. that benefit the rest.
Thought on treating type 2 is also evolving in ways that don’t benefit type 1 as much. For example, the trend is for pre-diabetes to be taken seriously and detected earlier.
You can find a case of someone getting into a specialist or a surgery within 2 weeks in the US, but you can also find the opposite.
As much as Canadians like to crap on US healthcare, it does have its perks in certain situations.
Scoreboard says people still want to move to the US
Meanwhile the actual social mobility in the USA is lower than in Europe[1], so you'd be better to stay put or go to Europe. People here don't know what they got.
You say twitter, but it might just be people that have access to the internet and better information?
I'd be curious if anyone looked into why the USA is seen as so ideal when various metrics are only on par with developing countries. (Of course, it's clearly beyond a developing country, it just doesn't like to admit it -- healthcare, welfare, incarceration rates, income equality, minimum wage, minimum paid time off, university costs, etc. Sources here are OWID and Wikipedia, mainly from memory but feel free to ask for a specific source)
Another theory is that the USA generally sees itself as the best country, with e.g. starting every morning of primary school with this "pledge of allegiance" indoctrination (sorry, I have no other word for it and I still have a hard time believing this is real). With English being the lingua franca online, much of what you read online is likely to be written by someone who thinks this way.
[1] See figure 1 on the 43rd page which has page number 40 https://docs.iza.org/dp1993.pdf
If you get stuck at a moderate FAANG salary for life, it may still be better than where you started from, for example.
Notably, all but 2 of the European countries in that study have smaller populations than Los Angeles. It's a lot easier to have social mobility for a small group than it is for a much larger group, especially when they can offload a lot of social ills (homelessness, immigration) entirely to other countries. Which is presumably why the study excluded the Mediterranean and Eastern European countries.
Also I didn't hand-pick the source, it's just a piece of info I came across while reading https://news.ycombinator.com/item?id=31705542 which had a link to clearerthinking.org which had a quiz called "Political Bias Test" (wouldn't recommend it btw, at least not for the advertised purpose; it's more of a "do you know random stats about the world" quiz) which had a question about social mobility with the aforementioned source. The website seems to be made by an organisation founded in New York, but it's not clear to me whether a European made this particular quiz question.
At any rate, it seems the European HNers took issue with learning that their tiny homogenous countries do better than a country with a larger population than their entire continent. Which is made possible because the U.S. pays for their defense.
If stats tell you one story but reality tells you a different one, then you should ask why that is, and not say the numbers are right and reality is wrong, or vice versa. There are more possibilities than just the world is getting bamboozled by brainwashed Americans online.
Still, though...
Scoreboard also says many, many people are choosing to move to Florida at the expense of other states - one of the top 10 states IIRC.
Ie I can move with my skillset and languages to most of the world. I did move twice. Didn't consider US, ever, even if I loved common US folks I met when I spent few months there. Society is just not that good - lack of true freedoms, high criminality, class system based on income, messed up medical and school system, too much workoholism. Not a place to raise your child in, if you can stay ie in Switzerland.
You sound like quite the elitist...that would be like me telling those 'poor uneducated and desperate people living in Detroit, they should just move to Naples FL or Beverly Hills to escape the poverty and crime - if only they were smart enough.
https://en.wikipedia.org/wiki/List_of_U.S._states_and_territ...
Especially given then title of the article, and that insulin in generally free in Europe AFAIK.
So the rest of the world wants to move to the USA because of the great weather, low income taxes, and the fact that the government doesn’t demand that you stay at home during a health scare?
> the government doesn’t demand that you stay at home
You mean "politely suggest" without any coercion.
Good luck "staying at home" when your home falls into the ocean the day after your last 3 insurance companies decided to close their doors forever.
https://worldpopulationreview.com/country-rankings/health-ca...
https://www.oecd-ilibrary.org/sites/242e3c8c-en/1/3/2/index....
As an American with expensive (~$800/month, rising to over $1000/month next year) insurance, I often have to wait to see a specialist and only go see my GP for regular check-ups.
If I have an issue that needs to be addressed immediately, I have two choices: an "urgent care" facility or an emergency room.
Urgent care, at least in my experience, is a misnomer as I've (with a small sample size) alternately been refused treatment and been told to go to the emergency room ("we can't handle that sort of thing") while still being charged for something, or given substandard treatment.
Which, I guess, is why urgent care is 1/3 the cost (out of pocket) of an emergency room visit.
Should I wish to see my GP, I likely would need to wait at least a few weeks, possibly longer. With even longer waits for specialists.
Certainly not half a million people a year most of whom are insured.
Yep. Because it's broken...
America pays more because our health care system is capitalist, and that naturally leads to increased prices because demand is inelastic (meaning, that demand does not decrease based on price).
That's not far off from what I pay in Canada, assuming we're talking a standard 1000 U vial. I thought insulin was typically around 5x that price in the USA.
https://www.deseret.com/utah/2022/3/8/22968089/utah-company-...
I'm not sure how $30 for 100 units of insulin compares to the status quo, but they make it sound like it'll be significantly cheaper. It's supposedly slated for 2024, assuming FDA approval.
Insulin comes in several different forms. It's the patented, long-acting forms that are currently expensive in the United States.
Regular generic insulin is $25/vial at Walmart. You actually don't even need a prescription to get it in most places. The low price of regular insulin is actually unknown to huge numbers of Americans, who are only familiar with insulin analog prices talked about in headlines. There's even a Snopes page confirming that Walmart sells $25/vial insulin because so many people think it must be untrue ( https://www.snopes.com/fact-check/insulin-walmart-vial/ )
WalMart also sells a long-acting insulin analog (NovoLog) for about $75/vial (1000 U total): https://www.walmart.com/cp/relion-diabetic-care/3769564
There is a major problem with insulin education among healthcare providers, IMO. A lot of them will write prescriptions for expensive long-acting forms because they don't ask the patient's financial/insurance status. A lot of patients aren't even aware that they are on a specific patented insulin analog. They just know they take "insulin", that it's expensive when they fill the prescription, and that all of the headlines say insulin is expensive and therefore their experience is normal. It's a dumb situation.
Even dumber: Many Insulin analog manufacturers will actually reimburse low-income patients for their out-of-pocket costs of buying insulin. If you do some research, even the expensive insulins can become very affordable or even free by filling out the right forms. Again, dumb situation, but it's out there.
Another problem to factor in with costs is if you have a HSA (and some other insurance plans). Many of the insurance companies are forcing ppl to purchase their supplies through a handful of "authorized" medical suppliers. If you fail to purchase through them, they will not apply the costs against your deductible, which I think is completely BS. To add insult to injury, these "authorized" medical suppliers mark up the supplies substantially (compared to Costco and other pharmacies).
Something is really broken in this model...
It's not free?
80% credit card use sounds like American consumer finance behavior across the board, whether to defer payment or earn points. Accumulating an average debt of $9,000 solely from insulin would be difficult to accomplish given the high insurance rate, and difficult to separate from other debt and report (plus there appears not to be a control for personal finance ability and circumstance.)
There are serious initiatives and legislation to provide cheap, high quality generic insulin and monitoring tools, that don’t need help from counterproductive, bad statistics.
There's a group in Oakland called the Open Insulin Foundation doing some good work: https://openinsulin.org/
Somewhat mystifies me why a much-much cheaper alternative to the Big Three hasn't sprung up, but I'd bet a lot on the FDA.
I can't see any other reasonable explanation for list prices for the same medications that cost 3X, even 10X! Times more than in France, Sweden, or even Mexico or Brazil.
There is probably a symbiotic relationship where insurance providers benefit from very high public listing prices while paying heavily discounted prices behind the scenes and providing market protection for monopolist pharma companies.
Why would a pharma company collude with insurers in one country and no others?
I don't think it is a stretch to assume that these high medical costs, specifically insulin are forcing patients into debt.
But 79% still seems really high, given 90% are covered by health insurance.
I fear the price controls for insulin will only lead to shortages. I think allowing imports would be a better strategy.
Maybe a sudden surge of consumption due to greater availability will be a regression for the rich people that could previously buy as much as they wanted, but it will be a life-saver for countless others. Supply ought to pick up so long as the price is above production cost, and that's if there is a shock in the first place. Producers can anticipate if this is announced ahead of time.
At some point, the technology needed to produce simple but effective medication for widespread illnesses must be feasible enough for many people.
And when you're detached from an affordable access to the medical system, you may not care about the potential shunning that results from DIY medication.
Otherwise, the headline is meaningless.
https://www.militarytimes.com/opinion/commentary/2018/07/18/...
Also, I know that some makers ( Eli Lilly in particular ) also offer need-based aid programs to provide insulin. If you reach out to them and they're manufacturing, I believe you can get the insulin at near free if not free. ( This is also true for many medications that fall into the commonly-used category, you can explore manufacturer sites to see if they provide aid for a particular drug that is in your list )
Obvs it would be great if they covered 100%, but if you're trying to cover your ass right now, it's worth asking your provider about.
Because the number of people using aid programs is a major factor in getting them identified and improved.
So some more ancedotes to confirm.
https://web.archive.org/web/20220521183320/https://www.nytim...
Legislators with health industry contacts are the only healthcare users in the US whose effective copays are negative.