Did you get diagnosed by a professional? I suspect I suffer from the same rare symptoms but I am too affraid to ask an ophthalmologist on such a rare condition.
The MRI found absolutely nothing. My eye doctor says my eyes are extremely healthy.
My symptoms line up exactly with VSS and I had a lot of peace of mind knowing what I was experiencing and that I wasn't going blind, so I didn't pursue the proper further test (PET scan, I think).
Honestly, the peace of mind was worth it, but be armed with research on it.