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Comment by vmception | Hacker News Reader

Reading about the guy that became unlocked (it wasnt ALS) it always haunts me that it took him a couple days to even know he was locked in

At first he thought the nurse was just being unsocial when they came to do routine stuff with him! and then he realized he was in spectator mode

Its going to be really hard for a lot of people when they find out whats going on with their locked in or previously locked in loved ones

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Literally my greatest nightmare scenario. Nothing scares me more. Similarly, the jaunt is sort of the extreme version of this, and I try not to think about it x_x

Sometimes I have sleep paralysis (very rarely) and it's the worst, scariest feeling.

Sleep paralysis is scary. I haven't had it in 30 years, but I remember how shocking it was the first time. Curiously, in my case I also remember distinctly giving up and thinking "well alright, guess I'm going to die, wow" and being calm about it. Then the paralysis wore off.

I have sleep paralysis every night when I try going to sleep, and in the mornings when I try to wake up.

Normally a few times in a row. I don’t sleep much because of it.

> I don’t sleep much because of it.

Insomnia and sleep deprivation are associated with increased risk of sleep paralysis...

Wow, that sucks fiercely. I can't imagine dealing with that on a regular basis. Every night! I wouldn't sleep much either. Damn.

What was his name?

Not sure if talking about the same person, but there is Martin Pistorius who wrote a book about his horrific experience, and was even abused by one of his carers while not being able to do anything about it.

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