Making this comment because I suffered (and recovered from) ME/CFS myself.
Making this comment because I suffered (and recovered from) ME/CFS myself.
Burnout, however, does tend to respond positively to exercise over time. Burnout and ME/CFS are very different conditions.
> Making this comment because I suffered (and recovered from) ME/CFS myself.
How were you able to recover from ME/CFS? It seems spontaneous recovery does happen to some, though for others it is a chronic condition that will likely require some future medical advances to overcome.
That's not quite true, because it isn't all exertion that causes PEM. Generally it is only doing too much that triggers it.
Importantly, the delayed worsening can clearly be measured by light exercise testing. It isn’t the same as normal post-exercise recovery or soreness. It’s far worse and can even be triggered by strenuous mental activity (perhaps energy expenditure in general).
For many, it has a distinct viral trigger. They can be fine and healthy one week, then become chronic CFS sufferers after an infection with a number of notable viruses (EBV is common).
Sound familiar? It has a lot of parallels to “Long COVID”, but it just never got the same attention because it’s not attached to a global pandemic in the 24/7 news cycle.
I'm really grateful to have seen your comment and that you answered me, I will do some experiments and tests to asses my situation better and check if some of the solutions can help.
My wife has had ME/CFS for more than a decade. Honestly many of the touted remedies she finds online sound like snake oil, but if you are suffering and nobody has a good clue, you try each one in turn hoping you might be one of the lucky people who responds to a given modality.
Cort Johnson runs the website Health Rising, which acts as a clearing house for recent news about ME/CFS (and recently long covid as it relates to ME/CFS) and there is a community built around that site.
http://www.cfsselfhelp.org/library/fred-friedberg%2525E2%252...
https://forums.phoenixrising.me/threads/dr-friedberg-intervi...