If you don't have an official diagnosis, on what basis do you claim to be any more “actually autistic” than the other undiagnosed people that see themselves that way and are seeking an official diagnosis?
It seems like a bad idea to stigmatize people for seeking diagnosis.
There are plenty of stories of actually autistic people who don’t get diagnosed until much later because the people around them dismissed it or didn’t support them because their difficulties were not so visible.
Until you experience it yourself, you can't understand just how frustrating and demeaning it is.
I’m surprised people are seeking diagnosis just to have the label. What actual benefits are they getting?
In any case someone can be wrong about having autism, but not wrong that they have a particular challenge that others do not.
Not to downplay any difficulties you or someone else may have had, but a counter to this I am seeing some people claim on twitter that they should just be able to state their diagnosis without getting one and want accommodations for it because of poverty or family would look down on it.
This is very dangerous. People just assume they see a characterization on TV and assume they have that. Symptoms can be shared between different classes of syndromes. ADHD and High Functioning Autism both can share, on the surface, similar sensory processing issues, anxiety, and obsessive thinking in my experience; but I imagine the therapy and day to day accommodations that one with ADHD needs is much different that one with Autism (honestly I barely remember the therapy I got in school and I am hoping more people can chime on this).
How is this in any way related to the comment you are replying to? It seems like you misunderstood.
ADHD and autism also have significant comorbidity, though its possible only one or the other is initially diagnosed when they coöccur.
You are a self-diagnosed-autistic person (SDAP). You are upset that other SDAPs are consuming resources intended for ‘actual’ autistic persons. You would prefer to consume those resources yourself. You are trying to get a professional diagnosis as ‘autistic’. You have thus far been unsuccessful.
Are those the facts which you intended to convey?
People tell me I’m autistic all the time. I do not accept this label. I will not agree to the diagnosis, treatment, or aid of any sort. I don’t care if it’s in a book. I call it rationality. I see information where other people see emotions. I realize that this is a deficit in relating to many other people and the world at large. If I were to change one thing to adapt better, it would be stronger recognition and avoidance of emotional people, and closer connection to rationals. Emotional people can be very convincing to get what they want from rationals.
And no, we are not self-diagnosed.
Do you treat all marginalized groups this way?
But, to attempt, I’d first say that I don’t ‘treat’ groups. I interact with individuals. Also, I don’t know exactly what ‘marginalized’ means, but that sounds like something having to do with the way that others have treated those individuals.
So I’d probably say, on an individual basis, I think I treat most people the same. I tend to have a penchant for reaching out to people who I observe to have been ignored or mistreated by others because I find that they are often very happy to be treated normally, and make great friends. I’m not really a big fan of interacting with anybody that demands to be treated differently, if that’s what you mean.
So, yes, I think I’d say that I probably do.
As access to specific resources is a central part of the complaint it seems perfectly reasonable to request more details. They can be general, like "I can't book a psychiatrist" or "I need specific drugs that are in limited supply".
I’m not sure why, but I keep coming back to your comment, even an hour or more after you posted it. I feel sympathy for your lack of balance. I am reminded of these Supertramp lyrics:
When I was young, it seemed that life was so wonderful
A miracle, oh it was beautiful, magical
And all the birds in the trees, well they'd be singing so happily
Oh joyfully, playfully watching me
But then they send me away to teach me how to be sensible
Logical, oh responsible, practical
And they showed me a world where I could be so dependable
Oh clinical, oh intellectual, cynical
I don’t hear the remake using anything but the first verse of lyrics from the original.
And yes, it is wonderful that finally, autistic people get their voice, their agency and are (sometimes) getting treated as equals (even if different). Sadly, in some places, "autistic" is still being used as an insult, usually based on a harmful stereotype that autism is in any way related to the lack of empathy.
I love that the world changes to at least consider autism as a neurodivergence, even if not act upon that. Decades ago, it wasn't the same. Being traumatized by noise level was my problem, and even when I was in primary school, begging to let me go to some more quiet place, I was not allowed. Other kids were OK with the noise level, so why do I have a problem?
If a person needs some accommodation (say, reducing volume in their workplace), it shouldn't matter if they are "truly autistic" or "non-autistic, but highly oversensitive to noise". And converse - if someone declares themself "mildly autistic" but does not require special accommodations, they won't take precious resources from you.
I wish you success with getting the necessary accommodations!
> I don't think that "autistic" is more of a "status symbol" than, say, "gay".
Uh..aren't they both pretty big status symbols? Gay, queer, disability, "this is indigenous land". If I work as a disability officer, it's probably somewhat important my email byline has a disability (or two, of three).
"I have to prove my status" (as someone who is a disability officer) and "this person is a disability officer, they dont even have a disability or their pronouns in the signature?!".
> If I work as a disability officer, it's probably somewhat important my email byline has a disability
It's not.
I wonder what makes people deluded enough to believe that.
I have no idea what I am, but I know I'm not "normal" - at least as normal as most in America. I definitely think different and require a strong filter to function in normal society. Things like schedules and meetings overwhelm me mentally, or at least are the most tiresome stuff I do where to others they are trivial.
I also simply cannot push through "busy work" tasks even if I see immense payout in the end. I dropped out of high school without a plan simply because it was such a mental torture to sit through useless classes every day I could trivially test out of.
But, when I get an idea or project or goal in my head I am utterly relentless to a level I don't see in many others.
When I was younger I could kind of patch through this and find professional paths that worked alright with my quirks. Now that I'm older and have a family and "real" career with 7am alarm clocks/etc. I find life to be fairly unbearable from a mental aspect.
I'd really like to know what causes this in me. I've always been this way, to my extreme detriment, when I was younger I would cry myself to sleep just wanting to be "normal". Is it mild autism? ADHD? PTSD from childhood trauma? I dunno, but it's both relationship and career impacting and having to build your life around it sucks - knowing what your dealing with sounds amazing to me.
I just can't imagine wishing putting life on "hard mode" like this is on anyone, or anyone wanting to live it...
The other side too: there are plenty of thinkers and critics of modernity to make a case that the modern way of life is not really that healthy for neurotypical people — or more precisely, people with good, or great executive functioning, even if they are rewarded the most by modern society.
I argue that, the hard mode is not necessarily your neural wiring, but that our civilization and way of life is terribly skewed.
Hope you find some tools and understanding in the coming year.
And I really would be quite happy with that if it weren't for the fact that it's become popular and draws a ton of unwanted attention now.
That’s not to dismiss people who actually suffer from actual differences, but some of it is the same old “rebellion” in different clothing.
This may be the domain of the matchmaking industry, which basically exists to keep people feeling alienated.
I am not ignorant. I understand that many, perhaps the majority, of disabilities that exist in the United States are of the “invisible“ kind.
However, the number of individuals who want to elevate their very common, and human, difficulties in life, to a “disability“ is ridiculous. If I had to diagnose most of these people, I would call them narcissists.
I won't say I have ADHD, but I am very lazy. For my entire life, I've found myself unable to just snap out of laziness and choose to stop being lazy. I don't believe that I'm selfishly lazy, because my laziness often causes obvious, preventable problems for me, and I still can't find the switch inside myself to turn it off.
I wish we could set aside the labels and say "I'm lazy and I want to buy therapy to help me deal with being lazy." Maybe there is also a reason people are not getting their need for attention satisfied in whatever way they're supposed to.
I satisfy my need for attention by being good at programming, and then talking to other programmers about programming. I notice most people (general population) don't have any particular skill worth showing off like I do. I don't know what the actionable to fix that is, though.
Instead of forcing people to fabricate various illnesses to get performance enhancing medications, just make it over the counter.
Antidepressants, over the counter.
ADHD drugs, over the counter.
Anti-anxiety drugs, over the counter.
As long as you're at least 21, you should have the right to ingest whatever you want.
I personally wouldn't recreationally take any of the above, but I think everyone has a right to make their own choices.
In America there's a billion dollar industry in convincing everyone their broken. As far as I'm concerned I'm the best me I can be and that's it.
Their are tons of people who really do need medication.
Their are others who shop doctors to get the meds they want.
For example, it's common for kids struggling in college to get an ADHD diagnosis so they can study for longer hours. As far as I'm concerned as long as your adult, ingest whatever you want. But I don't think being unable to study Chem for 12 hours a day is an illness.
Why stop adults from doing what they want.
No one stops you from rock climbing, even though that's also dangerous.
ADHD medications don't really restore anyone to 'normal'. They're a compensatory measure ('performance enhancer') which is reserved only for some people mainly for bad reasons (the war on drugs, lack of public and accessible infrastructure for addiction treatment). They can be used to help people with certain deficits meet certain demands (typically productivity in work or school), but it's not like they counteract ADHD. They help with some aspects of the disorder (difficulty sustaining attention) and make other aspects of the disorder (difficulty being deliberate and judicious about when to switch tasks) worse.
Gating them heavily behind many appointments and preventing pharmacies from providing any refills makes stimulant medications harder to access for people who have ADHD, especially during bad times when it's relatively poorly managed, which forms a vicious cycle. (ADHDers sometimes refer to the total fees associated with missed and late appointments and other such mishaps as 'the ADHD tax', and it's not unusual for that sum to exceed what an ADHD patient actually pays in copays, especially when they're first trying to get things under control.)
Expanding public access both to stimulant medication and to addiction treatment could, imo, help more people live better lives (including both ADHD patients and people who don't have ADHD) and allow treatment of ADHD to focus more on people who actually have ADHD , and on all of the management aspects of living with ADHD (which are much harder and collectively at least as important as medication).
(At the same time, under the policies the GP described, I would continue to consult with a psychiatrist, because adjusting psychoactive medications without professional assistance is a stupid thing to do.)
I have inattentive ADHD and Aspergers, and wearing part of a nicotine patch for half the day really helps with focus issues. (Any longer and I don't sleep well, though.) I also take l-tyrosine and Avmacol, and drink tea.
Since I started this regimen, my work performance went up significantly and I got a promotion to a position I'd been wanting for nearly a decade. My wife is also a bit less upset with me and I feel subjectively more able to think ahead and plan.
Do you think someone with depressive tendencies should be able to overdose?
Please look up some of the package inserts. This isn't some globuli smartie medecine you are talking about. It's only legally available because the suffering caused by social isolation is less bearable than some of the side effects.
You can be happy if you only get malnutrition from them, if you are unlucky you'll end up with chronic diseases or cancer
If we had no drug enforcement whatsoever, sure. But as long as we do benzos may be one of the most dangerous forms of substances we have short of straight up opiods.
On the point of medication though I largely agree, the current system is insanely paternalistic. Like having patients be forced to follow up with doctors about medications they’ve been on for 5 years. However society doesn’t truly want to deal with the true costs of freedom like somebody being able to easily legally acquire a lethal dose of anxiety meds.
You can absolutely go to a therapist and say exactly that. You won't be turned away. Generally therapists are more interested in helping people versus labeling people.
Now I have a child with an official diagnosis, and I see a lot of the traits from my childhood, and things that I struggled with and her, just magnified.
I think if I were to go through the school system now, someone probably would have at least suggested that I get tested. Rather than berating me day after day and labeling me a bad kid
I could not believe the difference. For example, I never realized that some foods made me tired. Now when I eat breads or pastas, I notice i am tired afterwards (not immediately but after a time).
Very strange.
So I think, it is quite likely that it does affect other people differently. And it makes sense for them to cut that stuff out while I don't have to.
In my experience, the biggest issue with autism isn't so much raw awareness or availability, but that almost none of the "autism industry" caters to autistic people themselves. I sometimes end up excluding phrases like "your child", "the child", "the student", "my son", "my daughter" etc. from searches for information about autism because there's just so much stuff that's laser-focused on the concerns of presumed-neurotypical people around an autistic person.
I don’t claim to know what ‘autistic’ is, and I’ve never heard a clear definition.
If nothing else, makes me wonder if I missed out on a "welcome packet" or something I didn't know I was supposed to get. :P
NT is the large part of the bell curve. It’s called typical because they share mental ability traits with over 80% of the rest of humanity.
“I’m not neurotypical. That statement hurts me”
“It seems that we are in agreement on your first statement. Please help me understand how the second statement can be true.”
It's not at all silly. Not more than what's a good car. For some, a Toyota model is a good car. For some, a Mercedes model is a good car. A Dodge is a good car too perhaps. But a boat is not a good car. A Formula 1 engine is also not a good car.
An F1 car wouldn’t work for a family with kids but I’d love to daily one of those.
Nothing is absolute. Nothing is typical. An “NT” person in Japan is not the same as one in the US. Where do you draw the line? I posit you don’t. There isn’t a line. There isn’t a typical case. We are all so vastly different, often in ways we cannot see or understand.
Even assuming you could handle it (which is a huge assumption), you can not drive an F1 around on city streets. Ground clearance means will get hung up on the first driveway or minor road work you run into.
Supposedly they don't. Mental health professionals could probably diagnose neuroses or psychoses in most adults.