I'm sorry for your loss OP.

We had premature twins who both stayed in the NICU for around three months. Our total hospital bills came out to just under five million dollars. Fortunately we also had great insurance and received great care.

We fought with the insurance/hospital/vendors for over a year and was on the phone with them every single week for hours to get the covered procedures included. An annoyance, but we were able to navigate it. Our twins are thriving today.

Other families were not so lucky. We watched under or uninsured parents have to make decisions between the health of their sick children and their own financial livelihood. As educated privileged workers, the system worked for us. But it fails many. There has got to be a better way