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Comment by RobertDeNiro | Hacker News Reader

The number of patients that are interested in viewing or accessing their own data has to be negligible. Last time I got an Xray they actually gave me a DVD of the imaging itself. I remember looking at it, I thought it was neat, but ultimately there was little use in there for me. I dont know what % of patients have bothered to look at it.

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Viewing their own raw data may be negligible, but sharing between medical professionals is a relatively common and necessary practice. Currently it is extremely difficult to get one doctor to share medical information with another, and it shouldn't be.

Provider organizations are understandably reluctant to accept removable media from unknown sources due to the risk of malware. Many of the computers that doctors use don't have DVD drives or they're disabled for security.

Cloud is still a thing.

It's not about the patient reviewing their own data as much as it is about the patient having easy access to their data and can easily share that data with other consumers of it (i.e. some AI based interpretation service)

'Easy access' is scary for hospitals because it means increased possibility of HIPAA violations.

The P in HIPAA stands for portability. It should be a HIPAA violation for them to not give me the original data sets for my healthcare when I request them in person.

The data will get better

Healthkit ftw

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